Ga Yadda Rubutun Buga Ya Bani Murya Bayan Ciwon Cutar Tsananin Cutar Ulcer

Wadatacce

• Kirkirar wani dandali don zaburar da wasu
• Koyon yin shawarwari don lafiyar ku
• Canza fahimta da yada fata

Kuma a cikin yin hakan, baiwa sauran mata karfin gwiwa tare da IBD suyi magana game da bincikar su.

Stomachaches ya kasance wani ɓangare na yau da kullun na yarinta Natalie Kelley.

"Kullum muna hada shi ne kawai da ciwon ciki," in ji ta.

Koyaya, a lokacin da ta kasance kwaleji, Kelley ta fara lura da rashin haƙuri da abinci kuma ta fara kawar da alkama, kiwo, da sukari da fatan samun sauƙi.

"Amma har yanzu ina lura da duk lokacin da mummunan tashin hankali da ciwon ciki bayan na ci komai," in ji ta. "Kimanin shekara guda, na kasance a ciki da wajen ofisoshin likitoci kuma na ce ina da IBS [cututtukan hanji, yanayin rashin hanji] kuma ina buƙatar gano abin da abinci bai yi mini aiki ba."

Nasihunta ya zo lokacin bazara ne kafin shekarar da ta gabata ta kwaleji a 2015. Tana tafiya a Luxembourg tare da iyayenta lokacin da ta lura da jini a cikin kujerunta.

“Hakan ne lokacin da na san wani abu mai tsananin gaske yana faruwa. Mahaifiyata ta kamu da cutar ta Crohn tun tana saurayi, don haka muna da irin sa biyu da biyu tare duk da cewa muna fatan cutar ce ko kuma abinci a Turai yana yi min wani abu, "in ji Kelley.

Lokacin da ta dawo gida, sai ta shirya wani bincike na musamman, wanda ya sa aka gano ta ba tare da gano cutar ta Crohn ba.

"Na yi gwajin jini bayan 'yan watanni bayan haka, kuma a lokacin ne suka gano cewa na kamu da cutar ulcerative," in ji Kelley.

Amma maimakon jin takaici game da ganowarta, Kelley ta ce sanin cewa tana da cutar ulceitis ya kawo mata kwanciyar hankali.

"Na kasance ina yawo tsawon shekaru cikin wannan matsanancin ciwo da kuma wannan gajiya na din-din-din, saboda haka ganowar ta zama kusan tabbatarwa bayan shekaru da yawa na mamakin abin da ke faruwa," in ji ta. "Na san to zan iya daukar matakai don samun sauki maimakon yin facaka a makance da fatan cewa wani abu da ban ci ba zai taimaka. Yanzu, zan iya ƙirƙirar ainihin tsari da yarjejeniya don ci gaba. ”

Kirkirar wani dandali don zaburar da wasu

Yayinda Kelley ke koyon yawo game da sabon binciken nata, ita ma tana kula da shafinta mai suna Plenty & Well, wanda ta fara shekaru biyu da suka gabata. Amma duk da cewa tana da wannan dandamali a wurinta, yanayinta ba batun bane wanda gaba daya take sha'awar rubutawa.

“Lokacin da aka fara bincike na, ban yi magana game da IBD ba sosai a shafina. Ina tsammanin wani ɓangare na yana son yin watsi da shi. Na kasance a shekarar karshe ta kwaleji, kuma yana da wuya a yi magana game da abokai ko dangi, ”in ji ta.

Koyaya, ta ji kira don yin magana a kan shafinta da asusun Instagram bayan da ta sami mummunan tashin hankali wanda ya sa ta a asibiti a watan Yunin 2018.

“A asibiti, na fahimci yadda yake karfafa gwiwa ganin wasu mata suna magana game da IBD kuma suna ba da tallafi. Yin rubutun ra'ayin kanka a yanar gizo game da IBD da kuma samun wannan shimfidar don yin magana a bayyane game da rayuwa tare da wannan rashin lafiyar na yau da kullun ya taimaka mini warkarwa ta hanyoyi da yawa. Yana taimaka min jin an fahimce ni, domin lokacin da nake magana game da IBD ina samun bayanai daga wasu waɗanda suka sami abin da nake ciki. Ina jin kasa ni kadai a wannan yakin, kuma wannan ita ce babbar ni'ima. "

Tana da burin kasancewarta ta yanar gizo ta kasance game da karfafa wasu mata tare da IBD.

Tun lokacin da ta fara yin rubutu game da cutar ulcerative colitis a Instagram, ta ce ta samu sakonni masu kyau daga mata game da yadda sakonnin nata suka kasance masu karfafa gwiwa.

Kelley ta ce "Ina samun sakonni daga mata suna gaya min cewa sun fi samun karfi da kwarin gwiwa game da yin magana game da [IBD] dinsu da abokai, dangi, da kuma wadanda suke kauna."

Saboda amsar, ta fara gudanar da wani shiri kai tsaye na Instagram da ake kira IBD Warrior Women duk ranar Laraba, lokacin da take tattaunawa da mata daban da IBD.

"Muna magana ne game da nasihu masu amfani, yadda ake magana da ƙaunatattunmu, ko yadda ake kewaya kwaleji ko ayyukan 9 zuwa 5," in ji Kelley. “Na fara wadannan tattaunawar da kuma raba wasu labaran na mata a dandamalina, wanda yake da matukar birgewa, saboda yadda muke nuna cewa ba wani abu bane na boye ko jin kunya da kuma yadda muke nuna damuwarmu, damuwarmu, da lafiyarmu [damuwar] da ke zuwa tare da IBD an inganta su, haka nan za mu ci gaba da karfafa mata. ”

Koyon yin shawarwari don lafiyar ku

Ta hanyar dandalin sada zumunta, Kelley kuma tana fatan karfafawa matasa gwiwa da rashin lafiya mai tsauri. A cikin shekaru 23 kawai, Kelley ta koyi yin shawarwari don lafiyarta. Mataki na farko shine samun kwarin gwiwa wajan bayyanawa mutane cewa abincin da take zaba shine don lafiyarta.

"Tsince abinci tare a gidajen abinci ko kawo abincin Tupperware a wurin biki na iya bukatar bayani, amma kadan rashin jin daɗin da kuka yi game da shi, kaɗan rashin jin daɗin mutanen da ke kusa da ku [za su kasance]," in ji ta. "Idan mutanen kirki sun kasance a cikin rayuwarku, za su girmama cewa dole ne ku yanke waɗannan shawarwarin koda kuwa sun ɗan bambanta da na kowa."

Duk da haka, Kelley ya yarda cewa zai yi wuya mutane su danganta da waɗanda ke cikin samartakarsu ko 20s da ke fama da ciwo mai tsanani.

“Abu ne mai wahala tun kana karami, saboda ka ji kamar babu wanda ya fahimce ka, don haka yana da matukar wahala ka nemi kanka ko kuma ka yi magana a kai a fili. Musamman saboda a cikin shekarunku na 20, kuna da kyau kawai kuna so ku dace, "in ji ta.

Kallon saurayi da koshin lafiya yana karawa kalubale.

“Bangaren da ba a gani na IBD yana daya daga cikin mawuyacin abubuwa game da shi, saboda yadda kake ji a ciki ba abin da ake hasashen duniya a waje ba ne, don haka da yawa daga mutane suna ganin kamar ka wuce gona da iri ne, kuma hakan taka rawa a bangarori daban-daban na lafiyar kwakwalwarku, ”in ji Kelley.

Canza fahimta da yada fata

Baya ga yada wayar da kan jama'a da fata ta hanyar dandamali nata, Kelley kuma tana hada gwiwa da Healthline don wakiltar aikinta na kyauta na IBD Healthline, wanda ya hada wadanda ke zaune tare da IBD.

Masu amfani za su iya bincika bayanan membobinsu kuma su nemi dacewa da kowane memba a cikin al'umma. Hakanan zasu iya shiga tattaunawar rukuni da ake gudanarwa yau da kullun wanda jagorar IBD ke jagoranta. Tattaunawar tattaunawar sun hada da jiyya da illolin da ke tattare da ita, cin abinci da madadin hanyoyin kwantar da hankali, lafiyar hankali da tunani, zirga-zirgar kiwon lafiya da aiki ko makaranta, da sarrafa sabon bincike.

Kari akan haka, manhajar tana samar da lafiya da kuma bayanan labarai da kwararrun likitocin kiwon lafiya suka duba wadanda suka hada da bayanai kan jiyya, gwajin asibiti, da sabon binciken IBD, da kuma kula da kai da kuma bayanan lafiyar kwakwalwa da kuma bayanan sirri daga wasu wadanda suke zaune tare da IBD.

Kelley za ta dauki bakuncin tattaunawa kai tsaye sau biyu a bangarori daban-daban na manhajar, inda za ta gabatar da tambayoyi ga mahalarta don amsawa da kuma amsa tambayoyin masu amfani.

Kelley ya ce "Abu ne mai sauki a samu tunanin rashin nasara lokacin da aka gano mu da rashin lafiya mai tsanani." "Babban fata na shine in nunawa mutane cewa rayuwa har yanzu tana iya zama mai ban mamaki kuma har yanzu suna iya cimma dukkan burinsu da ƙari, koda kuwa suna rayuwa tare da rashin lafiya mai tsanani kamar IBD."

Cathy Cassata marubuciya ce mai zaman kanta wacce ta kware a cikin labarai da suka shafi lafiya, lafiyar kwakwalwa, da halayyar mutum. Tana da ƙwarewa don rubutu tare da tausayawa da haɗawa tare da masu karatu a cikin hanyar fahimta da jan hankali. Kara karanta aikinta nan.