Menene MS na Ci Gaban Firamare?

Wadatacce

• Sauran nau'ikan MS
• Menene hangen nesa ga PPMS?
• PPMS vs. SPMS
• PPMS da RRMS
• Menene alamun PPMS?
• Menene ke haifar da PPMS?
• Ta yaya ake gane cutar PPMS?
• Yaya ake kula da PPMS?
• Waɗanne canje-canje ne na rayuwa ke taimakawa tare da PPMS?
• Masu gyara PPMS
• Tallafi
• Outlook
• Awauki

Multiple sclerosis (MS) cuta ce ta kai tsaye wanda ke shafar jijiyoyi, ƙashin baya, da kwakwalwa.

Mutanen da aka bincikar su da MS galibi suna da abubuwan da suka bambanta. Wannan gaskiya ne ga waɗanda aka bincikar su tare da ciwon sikandire na farko (PPMS), ɗayan nau'ikan MS.

PPMS nau'in MS ne na musamman. Ba ya ƙunsar kumburi mai yawa kamar nau'ikan MS wanda ya sake dawowa.

Babban cututtukan PPMS ana haifar da lalacewar jijiyoyi. Waɗannan alamun suna faruwa ne saboda jijiyoyi ba su iya aikawa da karɓar saƙonni ga juna yadda ya kamata.

Idan kana da PPMS, akwai lokuta da yawa na nakasa tafiya fiye da sauran alamun, idan aka kwatanta da mutanen da suke da wasu nau'ikan na MS.

PPMS ba shi da yawa. Yana tasiri kusan 10 zuwa 15 na waɗanda aka bincikar su da MS. PPMS yana ci gaba daga lokacin da kuka lura da alamunku na farko (na farko).

Wasu nau'ikan MS suna da lokutan mummunan rashi da rashi. Amma alamun cututtukan PPMS suna samun karin sannu a hankali amma a hankali akan lokaci. Hakanan mutanen da ke da PPMS na iya samun sake dawowa.

PPMS kuma yana haifar da aikin jijiya don raguwa da sauri fiye da sauran nau'ikan MS. Amma tsananin PPMS da kuma saurin saurin ci gaba ya dogara da kowane yanayi.

Wasu mutane na iya ci gaba da PPMS wanda ke ƙara tsanani. Wasu na iya samun tsayayyen lokaci ba tare da bayyanar cututtukan cututtuka ba, ko ma lokuta na ƙananan ci gaba.

Mutanen da aka taɓa bincikar su da cutar ta sake dawowa MS (PRMS) yanzu ana ɗaukar su masu ci gaba na farko.

Sauran nau'ikan MS

Sauran nau'ikan MS sune:

• cututtukan cututtuka na asibiti (CIS)
• sake dawo da MS (RRMS)
• MS na gaba na gaba (SPMS)

Wadannan nau'ikan, wanda ake kira kwasa-kwasan, ana bayyana su ta yadda suke shafar jikin ku.

Kowane nau'i yana da jiyya daban-daban tare da hanyoyin kwantar da hankali da yawa da ke kewaye. Ofarfin alamun su da hangen nesa na tsawon lokaci shima zai bambanta.

CIS sabon tsari ne wanda aka ayyana na MS. CIS yana faruwa lokacin da kake da lokaci guda na alamun cututtukan ƙwayoyin cuta wanda ke ɗaukar aƙalla awanni 24.

Menene hangen nesa ga PPMS?

Hannun hangen nesa na PPM ya bambanta ga kowa da kowa kuma ba shi da tabbas.

Kwayar cututtukan na iya zama sananne a kan lokaci, musamman yayin da ka tsufa kuma ka fara rasa wasu ayyuka a gabobi kamar mafitsara, hanji, da al'aura saboda tsufa da PPMS.

PPMS vs. SPMS

Anan akwai manyan bambance-bambance tsakanin PPMS da SPMS:

• SPMS yakan fara ne azaman ganewar asali na RRMS wanda daga ƙarshe ya zama mai tsanani fiye da lokaci ba tare da wani rashi ko inganta alamun ba.
• SPMS koyaushe shine mataki na biyu na gwajin cutar MS, yayin da RRMS shine farkon ganewa da kansa.

PPMS da RRMS

Anan akwai manyan bambance-bambance tsakanin PPMS da RRMS:

• RRMS shine mafi yawan nau'in MS (kusan kashi 85 cikin 100 na bincikar cutar), yayin da PPMS na ɗaya daga cikin mawuyacin hali.
• RRMS ya ninka sau biyu zuwa sau uku na mata kamar na maza.
• Sabbin sababbin alamun sun fi yawa a cikin RRMS fiye da na PPMS.
• Yayin rashi a cikin RRMS, ƙila ba ka lura da wata alama ko kaɗan, ko kuma kawai ka sami havean alamun da ba su da ƙarfi.
• Yawanci, ƙarin raunin ƙwaƙwalwar ajiya yana bayyana a kan MRIs na kwakwalwa tare da RRMS fiye da na PPMS idan ba a magance su ba.
• RRMS yana da alamun bincikar cutar da wuri fiye da PPMS, kusan 20s da 30s, akasin 40s da 50s tare da PPMS.

Menene alamun PPMS?

PPMS yana shafar kowa daban.

Alamomin farko na PPMS sun haɗa da rauni a ƙafafunku da kuma samun matsalar tafiya. Wadannan cututtukan suna yawan zama sananne a tsawon shekaru 2.

Sauran cututtukan da ke cikin yanayin sun haɗa da:

• taurin kafa
• matsaloli tare da daidaito
• zafi
• rauni da kasala
• matsala tare da hangen nesa
• Ciwon fitsari ko na hanji
• damuwa
• gajiya
• nutsuwa da / ko girgizawa a sassa daban-daban na jiki

Menene ke haifar da PPMS?

Ba a san ainihin dalilin PPMS ba, da kuma MS gaba ɗaya.

Mafi yawan ka'idojin da aka fi sani shine cewa MS zata fara ne lokacin da tsarin garkuwar ku ya fara kai hari ga tsarin juyayi na tsakiya. Wannan yana haifar da asarar myelin, murfin kariya a kusa da jijiyoyi a cikin tsarin kulawa na tsakiya.

Duk da yake likitoci ba su yi imani cewa za a iya gado PPMS ba, yana iya samun sashin kwayar halitta. Wasu suna gaskanta cewa wata cuta ce ta haifar da shi ko kuma wani abu mai guba a cikin muhalli wanda idan aka haɗu da ƙaddarar kwayar halitta na iya ƙara haɗarin haɓaka MS.

Ta yaya ake gane cutar PPMS?

Yi aiki tare tare da likitanka don taimakawa wajen gano wanene daga cikin nau'ikan MS huɗu da kuke da su.

Kowane nau'in MS yana da hangen nesa da bukatun magani daban. Babu takamaiman gwaji wanda ke ba da ganewar asali na PPMS.

Doctors galibi suna da wahalar gano PPMS idan aka kwatanta da sauran nau'ikan MS da sauran yanayin ci gaba.

Wannan saboda batun larurar jijiyoyin jiki ya buƙaci ci gaba na tsawon shekara 1 ko 2 domin wani ya karɓi tabbataccen binciken PPMS.

Sauran yanayi tare da alamun kamannin PPMS sun haɗa da:

• yanayin gado wanda ke haifar da kauri, kafafu mara ƙarfi
• rashin bitamin B-12 wanda ke haifar da irin wannan alamun
• Cutar Lyme
• ƙwayoyin cuta, irin su kwayar cutar T-cell ta cutar sankarar bargo nau'in 1 (HTLV-1)
• nau'ikan cututtukan zuciya, kamar cututtukan zuciya na kashin baya
• ƙari a kusa da kashin baya

Don bincika PPMS, likitanku na iya:

• kimanta alamun ku
• sake nazarin tarihin ku
• gudanar da bincike na jiki yana mai da hankali kan tsokoki da jijiyoyi
• gudanar da hoton MRI na kwakwalwar ku da kashin baya
• yi hujin lumbar don bincika alamun MS a cikin ruwan kashin baya
• gudanar da gwaje-gwajen haɓaka (EP) don gano takamaiman nau'in MS; Gwajin EP yana motsa hanyoyin jijiyoyin azanci don sanin aikin lantarki na kwakwalwa

Yaya ake kula da PPMS?

Ocrelizumab (Ocrevus) shine kawai magani da Hukumar Abinci da Magunguna (FDA) ta amince dashi don magance PPMS. Yana taimakawa iyakance lalacewar jijiya.

Wasu magunguna suna bi da takamaiman alamun bayyanar PPMS, kamar su:

• matsewar tsoka
• zafi
• gajiya
• matsalolin mafitsara da na hanji.

Akwai hanyoyin kwantar da hankali da yawa da ke canza cuta (DMTs) da kuma magungunan da FDA ta amince da su don sake dawo da tsarin MS.

Waɗannan DMTs ba su kula da PPMS musamman.

Yawancin sababbin jiyya ana haɓaka don PPMS don taimakawa rage ƙonewa wanda ke kai hari ga jijiyoyin ku.

Wasu daga cikin waɗannan suma suna taimakawa magance lalacewa da gyaran hanyoyin da suka shafi jijiyoyin ku. Wadannan jiyya na iya taimaka wajan dawo da myelin a kusa da jijiyoyin da PPMS suka lalata.

Treatmentaya magani, ibudilast, an yi amfani dashi a Japan sama da shekaru 20 don magance asma kuma yana iya samun ɗan ikon magance kumburi a cikin PPMS.

Wani magani da ake kira masitinib an yi amfani dashi don rashin lafiyan ta hanyar niyya kwayoyin mast da ke cikin halayen rashin lafiyan kuma suna nuna alƙawari a matsayin magani ga PPMS, suma.

Yana da mahimmanci a lura cewa waɗannan maganin guda biyu har yanzu suna farkon farkon ci gaba da bincike.

Waɗanne canje-canje ne na rayuwa ke taimakawa tare da PPMS?

Mutanen da ke da PPMS na iya taimakawa bayyanar cututtuka tare da motsa jiki da kuma miƙa zuwa:

• zauna kamar yadda ya kamata
• rage yawan nauyin da kuka samu
• kara yawan kuzari

Anan akwai wasu ayyukan da zaku iya ɗauka don sarrafa alamun PPMS ɗinku kuma kula da ƙimar rayuwarku:

• Ku ci abinci mai kyau kuma mai gina jiki.
• Tsaya kan tsarin bacci na yau da kullun.
• Jeka ga aikin likita na jiki ko na aiki, wanda zai iya koya maka dabaru don haɓaka motsi da kuma kula da bayyanar cututtuka.

Masu gyara PPMS

Ana amfani da masu gyara guda huɗu don siffanta PPMS akan lokaci:

• Aiki tare da ci gaba: PPMS tare da mummunan bayyanar cututtuka da sake dawowa ko tare da sabon aikin MRI; kara nakasa shima zai faru
• Aiki ba tare da ci gaba ba: PPMS tare da sake dawowa ko aikin MRI, amma ba ƙara rashin ƙarfi ba
• Ba ya aiki tare da ci gaba: PPMS ba tare da sake dawowa ko aikin MRI ba, amma tare da ƙaruwa da ƙaruwa
• Ba ya aiki ba tare da ci gaba ba: PPMS ba tare da sake dawowa ba, aikin MRI, ko ƙaruwa da nakasa

Babban halayyar PPMS shine rashin sakewa.

Ko da mutum mai cutar PPMS ya ga alamun su ya tsaya - ma’ana ba su fuskantar munanan ayyukan cuta ko karuwar nakasa - alamomin su ba su inganta ba. Ta wannan hanyar MS, mutane ba su sake samun ayyukan da wataƙila suka rasa.

Tallafi

Idan kana zaune tare da PPMS, yana da mahimmanci a samo hanyoyin tallafi. Akwai zaɓuɓɓuka don neman tallafi a kan mutum ɗaya ko a cikin babbar ƙungiyar MS.

Rayuwa tare da ciwo mai tsanani na iya ɗaukar motsin rai. Idan kuna fuskantar ci gaba na baƙin ciki, fushi, baƙin ciki, ko wasu motsin rai masu wahala, bari likitan ku sani. Suna iya miƙa ka ga ƙwararren masanin lafiyar ƙwaƙwalwa wanda zai iya taimaka.

Hakanan zaka iya neman ƙwararren masaniyar lafiyar kai da kanka. Misali, Psychoungiyar Psychowararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun awararrun findwararrun Americanwararrun awararrun findwararrun Americanwararrun Americanwararrun Americanwararrun Americanwararrun findwararrun Americanwararrun Amurkawa suna ba da kayan aikin bincike don nemo masana halayyar ɗan adam a ko'ina cikin Amurka. MentalHealth.gov kuma yana ba da layin taimakon kulawa na kulawa.

Kuna iya samun taimako ga magana da wasu mutanen da ke zaune tare da MS. Yi la'akari da bincika ƙungiyoyin tallafi, ko dai ta yanar gizo ko kuma cikin mutum.

Multiungiyar Multiple Sclerosis Society tana ba da sabis don taimaka muku samun ƙungiyoyin tallafi na cikin yankinku. Hakanan suna da tsarin haɗin gwiwa tsakanin abokai da tsara wanda masu horar da masu sa kai waɗanda ke rayuwa tare da MS ke gudana.

Outlook

Yi rajista tare da likitanka a kai a kai idan kana da PPMS, koda kuwa ba ka da alamun bayyanar ɗan lokaci kuma musamman ma idan kana da ƙarin rikicewar rikicewa a cikin rayuwarka ta hanyar alamun bayyanar.

Zai yuwu ku sami rayuwa mai inganci tare da PPMS muddin kuna aiki tare da likitanku don gano mafi kyawun jiyya da kuma salon rayuwa da canjin abincin da ke muku aiki.

Awauki

Babu magani ga PPMS, amma magani yana da bambanci. Kodayake yanayin yana ci gaba, mutane na iya fuskantar lokaci na lokaci inda alamun ba sa tsanantawa sosai.

Idan kuna zaune tare da PPMS, likitanku zai ba da shawarar shirin magani bisa ga alamunku da lafiyar ku gaba ɗaya.

Habitsara halaye masu kyau na rayuwa da kasancewa cikin alaƙa da tushen tallafi na iya taimaka muku kiyaye ƙimar rayuwarku da jin daɗinku gaba ɗaya.