Danceaya daga cikin Rawan Wedaurin Aure ya Inarfafa Duniyar Yin Yaƙi da MS
A ranar bikin aure na Stephen da Cassie Winn a shekarar 2016, Stephen da mahaifiyarsa Amy sun raba rawa irin ta uwa / ɗa a wurin liyafar tasu. Amma da isa ga mahaifiyarsa, sai abin ya same shi: Wannan shi ne karo na farko da ya taɓa yin rawa tare da mahaifiyarsa.
Dalilin? Amy Winn tana rayuwa tare da cutar sclerosis mai yawa (MS), wata cuta mai kashe kansa wacce ke shafar tsarin jijiyoyin tsakiya, kuma an tsare ta a kan keken guragu na tsawon shekaru 17. Ci gaban Amy's MS ya iyakance ikonta na yin yawancin ayyukan asali da ake buƙata a kowace rana.
"Babu bushewar ido a cikin ɗakin," in ji Cassie, surukar Amy. "Yana da karfi sosai."
Bikin ya zo ne a lokacin canji ga dangin Winn, wanda ya kunshi Amy da 'ya'yanta uku masu tasowa. Yan Amy na biyu, Garrett, bai daɗe da barin gidansu na Ohio ba zuwa Nashville, kuma ɗiyarta Gracie tana kammala makarantar sakandare kuma tana shirin yin kwaleji. Yaran da ke barin gida da fara rayuwar su lokaci ne na ƙarshe a rayuwar kowane mahaifa, amma Amy na buƙatar taimako na cikakken lokaci, wanda shine dalilin da ya sa ya ji kamar cikakken lokaci don bincika zaɓuɓɓuka.
Cassie ta ce "Amy tana da wasu 'yan kawaye da suka tunkare ta don yin magana game da wadannan sabbin nasarorin da aka samu game da maganin kwayar halitta ga masu cutar MS, kuma hakan ya ba ta farin ciki matuka, saboda tana son sake tafiya," in ji Cassie. Koyaya, makaman yana cikin Los Angeles kuma babu ɗayan dangin da zai iya biyan magani. A wannan lokacin a cikin tafiyarta, Amy ta dogara ga addu'a da "abin al'ajabi" don nuna mata hanya.
Wannan mu'ujiza ta zo ne ta hanyar tara jama'a. Surukar Amy Cassie tana da asali a fagen tallan dijital, kuma ta yi bincike kan wasu dandamali na tara jama'a kafin ta nemo YouCaring, wacce ke ba da kuɗin neman kuɗi ta yanar gizo kyauta don abubuwan lafiya da na jin kai.
"Ban ma gaya wa Amy cewa na tsara shi ba," in ji Cassie. "Na kafa ta, na ce mata, 'Kai, za mu tara maka $ 24,000 kuma za ka je California.' Mun gaya wa likitocin ranakun da za mu zo Kalifoniya kafin ma mu sami wani kuɗi, saboda muna da irin wannan imani a ciki. Rawar farko ta Amy da Stephen ta kasance kyakkyawa, labari mai cike da fata, kuma mutane suna buƙatar ganin ƙarin fata kamar haka. Ban tabbata ba idan kun ga bidiyon da muka raba na rawar Stephen da Amy a shafinmu na tara kudi ba? ” Cassie ya tambaya, yayin tattaunawar tamu.
Na yi, haka ma wasu sama da 250,000 suka yi.
Bayan ƙirƙirar shafin su na YouCaring, Cassie ya aika da shirin zuwa kasuwannin labarai na cikin gida na Ohio, waɗanda labarin Amy ya birge su har bidiyon ya sami kulawar ƙasa a kan wasannin da suka haɗa da “Yau Nuna.” Wannan ya taimaka wajan neman kuɗi na dangin Winn don tara dala 24,000 da ake buƙata a cikin makonni biyu da rabi kawai.
"Abin birgewa ne mu ga irin martanin da muka samu kuma kawai ganin mutane suna goyon bayan wannan matar da ba su taba saduwa da ita ba," in ji Cassie. “Ba su san ko wacece ita ba a matsayin mutum, ko yaya iyalinta suke, ko ma halin da take ciki na kuɗi. Kuma sun yarda su ba da 'yan kuɗi dala ɗari. Kudi ashirin. Kudin hamsin. Komai. Mutane za su ce, 'Ina da MS, kuma wannan bidiyon tana ba ni fata cewa zan iya rawa tare da ɗana ko' yata a bikin aurensu cikin shekaru 10. ' Ko, 'Na gode sosai don raba wannan. Muna yi muku addu'a. Abin ƙarfafa ne sosai da jin cewa akwai magani a tattare da shi. '”
A cikin makonni huɗu, dangin Winn suka kafa shafin su na YouCaring, suka tara kuɗin da ake buƙata a kan layi, suka yi tattaki zuwa California, kuma suka taimaka wa Amy yayin da ta hau kan tsarin kwana 10 na tsarin kula da kwayar halitta. Kuma bayan 'yan watanni kawai na aikin, Amy da iyalinta suna lura da sakamako.
“Yana ji kamar ya fara-fara Amy zuwa ga kiwon lafiya. Kuma idan wani abu, to an dakatar da ci gaban cutar, kuma tana da ƙoshin lafiya, ”in ji Cassie.
Ta hanyar hada maganin ta na kwayar halitta tare da ingantaccen abinci, Amy tana matukar farin ciki da cigaban farko.
"Na lura da karuwar tsabta a tunani da kuma ci gaba a cikin maganata," Amy ta raba a shafinta na Facebook. Ni ma ina da karin karfi kuma ba ni da gajiya sosai! ”
Tafiyar Amy daga karshe zata saukar da ita zuwa Nashville don zama kusa da Stephen, Cassie, da Garrett yayin da zasu fara aikin gyaran jiki sosai. A halin yanzu, Amy "tana godiya sosai ga duk wanda ya taimake ni tun lokacin da na sami jiyya," kuma tana neman duk masu ba da gudummawa ta yanar gizo, abokai, da dangi "su ci gaba da yin addu'ar samun cikakkiyar maido da lafiyata!"
Iyalinta suna kasancewa da bege kuma sun sake yin rawa tare da Amy wata rana.
Cassie ta ce: "Tana iya buƙatar taimako a cikin wanka wani lokacin," in ji Cassie, "ko kuma tana iya buƙatar taimako ta shiga da fita daga gado, amma har yanzu ita mutum ce da za ta iya aiki, da tattaunawa, da abokai, da kasancewa tare da dangi , kuma naji dadin rayuwarta. Kuma mun yi imanin cewa za ta yi tafiya. ”
Michael Kasian editan fasali ne a Healthline wanda ya maida hankali kan raba labaran wasu da ke dauke da cututtukan da ba a iya gani, kamar yadda shi kansa yake zaune da na Crohn.