Sabuwar Shafin Healthline yana Taimaka Haɗa Waɗanda ke tare da IBD

Wadatacce

• Kasance wani yanki na al'umma
• Nemo ta'aziyya a cikin lambobi da ƙungiyoyi
• Misalan batutuwan tattaunawar kai tsaye
  
• Gano labarai masu sanarwa da martaba
• Wuri don inganci da fata

IBD Healthline app ne kyauta ga mutanen da ke dauke da cutar Crohn ko ulcerative colitis. Ana samun aikin a kan App Store da Google Play.

Nemo abokai da dangi waɗanda suka fahimta da tallafawa IBD ɗin ku wata taska ce. Haɗawa tare da waɗanda suka gamu da shi kai tsaye ba za'a iya maye gurbinsu ba.

Burin sabon shirin IBD na Healthline shine bayar da wuri don irin wannan haɗin.

An kirkireshi ne don mutanen da ke dauke da cutar Crohn ko ulcerative colitis (UC), manhajar kyauta tana bada tallafi daya-bayan-daya da kuma shawarwarin rukuni daga mutanen da suka fahimci halin da kake ciki, walau sabon likitan ne ko kuma kwararren likita.

"Yana nufin duniya a gare ni in sami damar haɗuwa da wanda ya 'same shi,'" in ji Natalie Hayden, wanda aka gano yana da cutar Crohn tun tana ɗan shekara 21.

"Lokacin da aka gano ni da cutar ta Crohn a cikin 2005, sai na ji na kaɗaita ni kaɗai," in ji ta. “Da na ba da komai don in sami damar kai wa ga mutanen da ke tare da IBD kai tsaye tare da raba tsorona, damuwa, da kuma gwagwarmaya ta kaina ba tare da tsoron hukunci ba. Abubuwan albarkatu ne kamar wannan [app] wanda ke ƙarfafa mu a matsayin marasa lafiya kuma ya nuna mana yadda rayuwa ke tafiya, koda kuwa kuna da cuta mai tsanani. "

Kasance wani yanki na al'umma

Aikace-aikacen IBD suna daidaita ku da mambobi daga al'umma kowace rana da ƙarfe 12 na rana. Matsayi na Pacificasashen Pacific dangane da:

• Nau'in IBD
• magani
• salon rayuwa

Hakanan zaka iya bincika bayanan martaba na memba kuma ka nemi haɗuwa kai tsaye tare da wani. Idan wani yana son daidaitawa da kai, ana sanar da kai kai tsaye. Da zarar an haɗa su, mambobi na iya aika saƙonni zuwa ga juna kuma a raba hotuna.

"Siffar wasan yau da kullun na karfafa min gwiwa don saduwa da mutanen da ba zan yi mu'amala da su ba, ko da kuwa na ga bayanansu a kan abincin," in ji Alexa Federico, wacce ke rayuwa da cutar ta Crohn tun tana 'yar shekara 12. “Samun damar yin hira da wani nan take yana da kyau ga duk mai bukatar shawara ASAP. Yana daɗa [jin daɗin] natsuwa da sanin cewa akwai hanyoyin sadarwar mutane da za a yi magana da su. ”

Natalie Kelley, wacce ta kamu da cutar UC a shekarar 2015, ta ce abin birgewa ne kasancewar ta san za ta samu sabon wasa a kowace rana.

"Yana da sauƙi ka ji kamar babu wanda ya fahimci abin da kake ciki, amma sai ka fahimci cewa a kowace rana da ka samu 'haɗuwa' da wanda ya yi shi ne mafi kwarewa ta musamman," in ji Kelley. "A lokacin da kuke tattaunawa da wani mayaƙin IBD kuma kuna da lokacin 'Ku samo ni!' Lokacin sihiri ne. Samun wani mutum zuwa sako ko rubutu lokacin da kake kwance a farke da dare tare da damuwa game da IBD ko kuma jin mummunan rashi na rashin wata fitowar jama'a saboda IBD yana da ban ƙarfafa. "

Lokacin da kuka sami wasa mai kyau, aikace-aikacen IBD ya katse dusar kankara ta hanyar bawa kowane mutum amsa tambayoyin don taimakawa tattaunawar ta gudana.

Hayden ya ce wannan ya haifar da hankali da kuma maraba.

"Abinda na fi so shi ne tambayar mai yanke kankara, saboda hakan ya sa na dakata da tunani game da tafiya ta haƙuri da kuma yadda zan taimaki wasu," in ji ta.

Nemo ta'aziyya a cikin lambobi da ƙungiyoyi

Idan kun fi tattaunawa da mutane da yawa a lokaci daya maimakon mu'amala daya-da-daya, manhajar na gabatar da tattaunawar kai tsaye kowace rana ta mako. Jagoran jagora na IBD ne ke jagorantar, tattaunawar rukuni ya dogara da takamaiman batutuwa.

Misalan batutuwan tattaunawar kai tsaye

• magani da kuma sakamako masu illa
• salon rayuwa
• aiki
• dangantaka da dangi da abokai
• kasancewa sabon kamu
• rage cin abinci
• lafiyar hankali da tunani
• kewaya lafiyar
• wahayi

“Siffar‘ Groups ’na daya daga cikin bangarorin masu matukar kima a cikin manhajar. Ba kamar a cikin rukunin Facebook ba inda kowa zai iya yin tambaya game da komai, [jagororin] suna ci gaba da tattaunawa kan batun, kuma batutuwan sun shafi abubuwa da yawa, ”in ji Federico.

Hayden ya yarda. Tana lura tana sauƙaƙa ƙwarewar aikace-aikacen saboda zaku iya shiga cikin batutuwan da suka dace da buƙatunku da abubuwan sha'awarku. Ta sami “ungiyoyin "Keɓaɓɓun ”ungiyoyin" da "sparfafawa" ƙungiyoyi masu ma'ana.

“Ina da shekara 2 da wata 4, saboda haka koyaushe ina ganin yana taimaka min in yi cudanya da‘ yan uwanmu iyayen IBD wadanda suka fahimci hakikanin yau da kullun. Ina da babbar hanyar sadarwar tallata dangi da abokai, amma samun wannan al'umma ya bani damar ganawa da mutanen da suka san ainihin yadda ake rayuwa tare da wannan cutar, "in ji Hayden.

Ga Kelley, ƙungiyoyin abinci da madadin magani, lafiyar hankali da motsin rai, da wahayi sun fi ɗaukar hankali.

“Kasancewar ni kocin kiwon lafiya gaba daya, na san ikon cin abinci kuma na ga yadda sauye sauyen abinci suka taimaka wa alamomin ciwan ulcer, don haka ina son samun damar sanar da wannan ilimin ga wasu. Har ila yau, ina tsammanin gefen lafiyar hankali da na tunanin IBD shine batun da ba a tattauna isa ba.

“Na san na samu matsala lokacin da na bude game da gwagwarmayar lafiyar tabin hankali da na yi bayan gano cutar ta IBD. Amma fahimtar yadda suke cudanya da juna da kuma jin an ba su ikon yin magana game da shi, da kuma nuna wa wasu cewa ba su kadai ba ne idan suna jin wannan hanyar wani babban bangare ne na aikina, "in ji Kelley.

Ta kara da cewa a matsayinta na mai zaman lafiya a yanar gizo, burinta na yau da kullun shine karfafawa wasu gwiwa.

“Musamman wadanda suke tare da IBD. Samun cikakkiyar kungiya [a cikin manhajar] sadaukarwa ga abin ban sha'awa yana da ban sha'awa, "in ji ta.

Gano labarai masu sanarwa da martaba

Lokacin da kake cikin yanayi don karantawa da koyo maimakon tattaunawa da tattaunawa, zaka iya samun damar samun lafiya da aka zaɓa da kuma labaran labarai game da IBD da ƙungiyar lafiya ta Healthline ta duba.

A cikin shafin da aka keɓance, zaku iya kewaya labarai game da ganewar asali, magani, lafiya, kula da kai, lafiyar hankali, da ƙari, da kuma labarai na sirri da kuma shaidu daga mutanen da ke zaune tare da IBD. Hakanan zaka iya bincika gwajin asibiti da sabon binciken IBD.

“Sashin‘ Gano ’yana da kyau saboda da gaske labarai ne da zaku iya amfani da su. Ya zama kamar gidan sayar da labarai ne wanda aka tsara musamman akan IBD, "in ji Hayden. "A koyaushe ina ƙoƙari na ilimantar da kaina game da rashin lafiyata da kuma abubuwan da wasu [mutane] ke fuskanta don haka zan iya zama mafi kyawun mai ba da shawara ga kaina da kuma wasu a cikin al'umma."

Kelley yana jin haka.

"Ina yin bincike akai-akai game da IBD da lafiyar hanji saboda kaina da kuma saboda abokan cinikina da kuma al'umma a kan Instagram da kuma shafin yanar gizan na," in ji ta. “Kasancewa cikin sauƙaƙe danna kan 'Discover' da kuma samun duk sahihan labarai masu alaƙa da IBD suna sa wannan aikin ya zama da sauƙi.

“Ina ganin ilimi na karfafawa, musamman idan ana batun zama tare da wata cuta mai tsanani. A da ban taba yin bincike ba saboda hakan ya sa ni jin dadi, amma yanzu na fahimci yadda nake da masaniya game da cutar tawa, hakan shi ne mafi alheri a gare ni. ”

Wuri don inganci da fata

Manufar kamfanin IBD Healthline shine karfafawa mutane gwiwa don rayuwa sama da IBD dinsu ta hanyar tausayawa, tallafi, da ilimi. Bugu da ƙari, yana da alama don samar da amintaccen wuri don nemo da karɓar shawarwari, nema da bayar da tallafi, da kuma gano sabon labarai na IBD da binciken da aka shirya domin ku kawai.

“Ina son yadda take tallafawa al'umma tuni. Na yi ƙoƙari na shiga wasu ƙungiyoyin tallafi ko allon hira a baya kuma koyaushe ina jin kamar sun juya zuwa wuri mara kyau da sauri, ”in ji Kelley.

“Kowane mutum a cikin wannan manhaja yana da haɓaka kuma yana damuwa da gaske game da abin da muke raba duka. Samun damar kafa tushen juna a cikin tafiye-tafiyenmu na IBD yana sanya zuciyata farin ciki, ”in ji ta.

Cathy Cassata marubuciya ce mai zaman kanta wacce ta kware a cikin labarai da suka shafi lafiya, lafiyar kwakwalwa, da halayyar mutum. Tana da ƙwarewa don rubutu tare da tausayawa da haɗawa tare da masu karatu a cikin hanyar fahimta da jan hankali. Kara karanta aikinta anan.