Jack Osbourne Ba Ya Son MS Ya Zama Wasan Tsammani

Wadatacce

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• Bukatar haɗi da ƙarfafawa
• Rayuwa mai girma tare da MS

Hoto wannan: tauraruwar gaske Jack Osbourne da 'yar uwarsa, Kelly, suna ƙoƙarin tserewa daga jirgin sararin samaniya mai ɓarnatar da kansa. Don yin shi, za su buƙaci amsa daidai tambayoyin game da ƙwayar cuta mai yawa.

"Yana da sauƙin faɗi idan wani yana da MS," an karanta wata tambaya. Gaskiya ko karya? “Falarya,” in ji Jack, kuma ma'auratan sun ci gaba.

"Mutane nawa ne a duniya suke da MS?" karanta wani. “Miliyan 2.3,” ya amsa Kelly, daidai.

Amma me yasa dangin Osbourne suke ƙoƙarin tserewa daga sararin samaniya, wani na iya yin mamaki?

A'a, baƙi ne suka sace su ba. Jack ya haɗu tare da ɗakin tserewa a cikin Los Angeles don ƙirƙirar sabon shafin yanar gizon don Ba ku sani ba Jack Game da MS (YDKJ) yaƙin neman zaɓe. Creatirƙirar da aka kirkira tare da haɗin gwiwa tare da Teva Pharmaceuticals shekaru huɗu da suka gabata, ana yin yaƙin ne don samar da bayanai ga waɗanda suka kamu da cutar ko kuma suke rayuwa tare da MS.

"Mun so sanya yakin neman zaben ya zama na ilimi da nishadi da kuma saukin kai," in ji Jack. "Ba hallaka-da-duhu ba, ƙarshen-yana kusa da nau'in kaya."

"Muna ci gaba da kasancewa mai daɗi da kuma ɗaukaka kuma muna yaɗa ilimi ta hanyar nishaɗi."

Bukatar haɗi da ƙarfafawa

An gano Osbourne da cutar sake kamuwa da cutar sankarau (RRMS) a shekarar 2012 bayan ganin likita don cutar neuritis, ko kuma jijiyar ido. Kafin alamun cutar ido su faru, ya kasance yana fuskantar fishewa da rauni a kafa har tsawon watanni uku a tsaye.

"Na yi biris da nune-nune a kafa na saboda na yi tunanin kawai jijiya ce," in ji Jack. "Ko da lokacin da na kamu da cutar, na yi tunani, 'Shin ban yi ƙuruciya da samun wannan ba?' Yanzu, Na san matsakaicin shekarun gano cutar tsakanin 20 da 40."

Osbourne ya ce yana fata da ya san ilimin MS sosai kafin a gano shi. "Lokacin da likitoci suka gaya mani, 'Ina tsammanin kuna da MS', sai na yi tsokaci da tunani: 'Wasan ya wuce.' Amma wannan na iya kasancewa lamarin shekaru 20 da suka gabata. Ba haka bane kawai batun. "

Ba da daɗewa ba bayan koyo yana da cutar ta MS, Osbourne ya yi ƙoƙari ya haɗu da duk wanda ya san da cutar don samun kansa, asusun kansa na rayuwa tare da MS. Ya sadu da babban aminin danginsa Nancy Davis, wanda ya kafa Race to Erase MS, da kuma Montel Williams.

"Abu daya ne a karanta [game da MS] a yanar gizo, amma wani kuma a mika shi domin jin ta bakin wani da ke dauke da cutar na wani dan lokaci don samun kyakkyawar fahimtar yadda yanayin yau da gobe ya ke," in ji Osbourne . "Wannan ya kasance mafi taimako."

Don biyan shi gaba, Osbourne ya so zama wannan mutumin da wuri ga sauran mutanen da ke zaune tare da MS.

A kan YDKJ, Jack ya gabatar da jerin rukunin yanar gizo-wani lokacin yana nuna bayyanuwa daga iyayensa, Ozzy da Sharon-da kuma rubutun blog da hanyoyin haɗin albarkatun MS. Ya ce manufarsa ita ce ta zama hanyar tafi-da-kai ga mutanen da aka gano kwanan nan tare da MS, ko kuma kawai son sanin yanayin.

"Lokacin da aka gano ni, na dauki lokaci mai tsawo a kan intanet da zuwa shafukan yanar gizo da kuma shafukan yanar gizo kuma na gano cewa babu ainihin shago guda ɗaya a kan MS," in ji shi. "Ina so in ƙirƙiri wani dandamali don mutane su je su koya game da MS."

Rayuwa mai girma tare da MS

Jack ya tuna lokacin da wani aboki - wanda shi ma yana da MS - wani likita ya gaya masa ya ɗauki Advil, ya je ya kwanta, kuma ya fara kallon shirye-shiryen zance na rana, saboda wannan shine rayuwarta duka.

“Wannan ba gaskiya bane. Gaskiyar cewa akwai ci gaba da yawa na ban mamaki a can da kuma masaniya game da cutar, [mutane suna bukatar su sani] cewa za su iya ci gaba [ko da iyakancewa] musamman ma idan suna kan tsarin magani daidai, ”in ji Jack. Duk da ainihin ƙalubalen da MS ke gabatarwa, ya ce yana son ƙarfafawa da samar da fata cewa "zaku iya rayuwa mai girma tare da MS."

Wannan ba yana nufin cewa babu kalubale na yau da kullun ba, kuma bai damu da makomar ba. Tabbas, ganewar Jack ya zo makonni uku kawai kafin haihuwar 'yarsa ta fari, Pearl.

"Babban abin damuwa da rashin iya motsa jiki ko gabatar da komai a rayuwar yarana abin tsoro ne," in ji shi. "Ina motsa jiki a kai a kai kuma ina lura da irin abincin da nake ci, kuma na yi kokarin rage damuwa - amma hakan ba shi yiwuwa idan kana da yara kana aiki."

“Duk da haka, Ban ji an iyakance ba tun lokacin da aka gano ni. Sauran mutane sun ji an takaita ni, amma wannan ra'ayinsu ne. "

Tabbas Jack ba'a iyakantashi a cikin raba labarinsa da rayuwa mai cikakke ba. Tun lokacin da aka bincikar shi, ya shiga cikin "Rawa tare da Taurari," ya faɗaɗa danginsa, kuma ya yi amfani da mashahurinsa don yada wayar da kan jama'a, raba bayanai, da haɗi tare da wasu da ke zaune tare da MS.

“Ina samun sakonni ta kafofin sada zumunta, kuma mutane a kan titi suna zuwa wurina koyaushe, ko suna da MS ko kuma wani dangi ko kuma aboki na yi hakan. Tabbas MS ya haɗa ni da mutanen da ban taɓa tsammanin zan same su ba. Yana da kyau, a zahiri. "