Ciwon Crouzon: menene, babban alamun cuta da magani

Wadatacce

• Babban bayyanar cututtuka
• Yadda ake yin maganin

Ciwon Crouzon, wanda aka fi sani da craniofacial dysostosis, cuta ce mai saurin gaske inda akwai saurin rufe dinkunan kwanya, wanda ke haifar da nakasar jiki da na fuska. Wadannan nakasassu na iya haifar da canje-canje a cikin wasu tsarukan jiki, kamar hangen nesa, ji ko numfashi, wanda hakan ya zama dole a gudanar da aikin tiyatar gyara tsawon rayuwa.

Lokacin da ake zargi, ana yin binciken ne ta hanyar gwajin kimiyyar halittar jini da ake yi yayin ciki, ko a haihuwa ko a lokacin shekarar farko ta rayuwa, amma yawanci ana gano shi ne kawai a shekara 2 lokacin da nakasar ta fi bayyana.

Babban bayyanar cututtuka

Halayen yaron da ya kamu da cutar ta Crouzon ya bambanta daga mai rauni zuwa mai tsanani, gwargwadon tsananin nakasar, kuma sun haɗa da:

• Nakasassun abubuwa a cikin kwanyar kai, kan ya dauki wani bangare na hasumiya kuma mai nape ya zama yayi kyau;
• Canje-canjen fuska kamar su idanuwa masu jujjuyawa kuma mafi nesa da yadda aka saba, ƙara girman hanci, strabismus, keratoconjunctivitis, bambanci a girman ɗaliban;
• Saurin motsi da saurin maimaita ido;
• IQ a ƙasa da al'ada;
• Kurma;
• Matsalar ilmantarwa;
• Lalacewar zuciya;
• Rashin rarar hankali;
• Canje-canje na hali;
• Brown zuwa launin toka mai launin toka a duwawu, wuya da / ko ƙarƙashin hannu.

Abubuwan da ke haifar da cutar ta Crouzon na asali ne, amma shekarun iyayen na iya tsoma baki tare da haɓaka damar haihuwar jaririn da wannan ciwo, saboda tsofaffin iyayen, suna da damar samun nakasar da ke tattare da yanayin.

Wata cuta da za ta iya haifar da alamomin kwatankwacin wannan ciwo ita ce cutar Apert. Ara koyo game da wannan cutar kwayar halitta.

Yadda ake yin maganin

Babu takamaiman magani don warkar da cutar ta Crouzon, don haka maganin yaron ya haɗa da yin tiyata don tausasa canjin ƙashi, rage matsin lamba a kai da hana canje-canje a ci gaban ƙwanƙwan kwanya da girman kwakwalwa, la'akari da tasirin kyawawan dabi'u da kuma tasirin da ke nufin inganta ilmantarwa da aiki.

Yakamata, ayi tiyata kafin shekarar farko ta yaro, tunda ƙasusuwan sunada sauki kuma sunada saukin daidaitawa. Bugu da kari, an yi amfani da cikewar nakasar kashi tare da sinadarai na methyl methacrylate a aikin tiyatar kwalliya don yin laushi da daidaita yanayin kwalliyar fuska.

Bugu da kari, yaron dole ne ya sha magani na jiki da na aiki na ɗan lokaci. Makasudin aikin likita shine inganta rayuwar yaron da kuma kai shi ga ci gaban psychomotor kamar yadda yake daidai da yadda ya kamata. Magungunan ƙwaƙwalwa da maganganun maganganu suma nau'ikan hanyoyin magancewa ne, kuma tiyatar filastik ma tana da amfani don inganta yanayin fuska da haɓaka girman kai na mai haƙuri.

Hakanan, bincika wasu atisaye waɗanda za a iya yi a gida don haɓaka ƙwaƙwalwar jariri da haɓaka ilimantarwa.