Endometriosis: Neman Amsoshi

Wadatacce

• Yarda da ra'ayoyi marasa kyau
• Hanyar m zuwa ganewar asali
• Rayuwa bayan bincike
• Shawara don kulawa mafi kyau

A ranar da ta kammala karatunta na kwaleji shekaru 17 da suka wuce, Melissa Kovach McGaughey ta zauna a tsakanin takwarorinta suna jiran a kira sunanta. Amma maimakon cike da jin daɗin wannan lokacin, sai ta tuna wani abu da bai da maraba sosai: zafi.

Ta damu da cewa magungunan da za ta sha a baya za su ɓace yayin bikin, ta shirya gaba. "Na sanya jaka a ƙarƙashin rigar kammala karatuna - tare da ƙaramar ƙaramar ruwa da kwalbar kwaya - don haka zan iya shan kashi na na gaba na maganin ciwo ba tare da tashi ba," in ji ta.

Wannan ba shine karo na farko ko na karshe da zata fara damuwa game da ɗaukar wannan matakin ba. Yanayin mata, wanda ke haifar da nama daga layin mahaifa don ya girma a kan wasu gabobin - ana bayyana shi da farko, kuma a bayyane, da ciwo.

McGaughey, tsohuwar tsohuwar mamba a kungiyar ta Endometriosis Association a Wisconsin, ta kwashe shekaru da dama tana kula da alamun cutar. Tana iya bin diddigin nata tun lokacin da ya fara samartaka.

Ta ce "Na fara zargin wani abu ba daidai ba ne a lokacin ina da shekara 14 lokacin da na ga kamar na kamu da tsananin ciwon mara fiye da abokaina," in ji ta.

Bayan shekaru da yawa na rashin samun sauki ta hanyar ibuprofen, duk da haka, likitocin da take gani suna ba da maganin hana daukar ciki na hormonal don rage mata ciwo. Amma kwayoyin ba su yi hakan ba. McGaughey, mai shekaru 38, ya ce: "Kowane watanni uku, an saka ni a wani yanayi, wanda ya ce wasu ma sun nuna tawali'u da sauyin yanayi.

Bayan watanni da yawa ba tare da gano mafita ba, likitocin ta sun ba ta abin da ta ji kamar ƙarshe: Za ta iya ci gaba da fama da matsanancin ciwo ba tare da sanin dalilin ba ko kuma shiga wukar don gano abin da ke faruwa.

Yayinda aikin laparoscopic zai zama mai cutarwa kaɗan, "Tunanin yin tiyata don kawai a gano shi ya kasance da wuya a haɗiye kamar ɗan shekara 16," in ji ta.

Hagu tare da 'yan zaɓuɓɓuka, McGaughey daga ƙarshe ya zaɓi kada ya ci gaba da aikin tiyatar. Shawara, in ji ta, daga baya za ta yi nadama, saboda tana nufin karin shekaru da yawa da aka shafe cikin wahala mai raɗaɗi.

Sai bayan da ta kammala karatun ta daga kwaleji a shekara 21 sannan ta ji ta shirya cikin tunani don fuskantar aikin kuma a ƙarshe ta sami ganewar asali.

"Likita ya gano cututtukan endometriosis kuma ya kawar da duk yadda ya kamata," in ji ta. Amma hanyar ba magani ba ce-duk abin da take fata. "Matakan ciwo na sun ragu sosai bayan haka, amma shekara-shekara ciwon na sake dawowa yayin da ƙarshen yake girma."

Ga kimanin 1 a cikin mata 10 na shekarun haihuwa a Amurka waɗanda yanayin ya shafa, wannan wasan kyanwa da bera duk sun saba sosai. Amma sabanin sauran cututtukan da ke da cikakkiyar amsa, babu sanannen magani na endometriosis.

Abin da yawancin waɗannan mata suka haɗu da shi, duk da haka, rikicewa ne.

Lokacin da mai kafa da kuma Shugaba na Flutter Health, Kristy Curry, ke cikin shekarunta na 20, ta san wani abu da ba shi da kyau bayan da ya kusan wucewa cikin wanka daga ciwon mara na haila.

Kodayake ba baƙuwa ba ce ga tsawon lokaci mai tsananin zafi, wannan lokacin ya bambanta. "Ban sami damar zuwa aiki ko makaranta ba 'yan kwanaki kuma na kasance a kan gado," in ji mazaunin Brooklyn. "Ina tsammanin wannan al'ada ce saboda ba za ku iya 'kwatanta' wahalar lokaci da wani [wani] ba."

Duk wannan ba da daɗewa ba ta canza, duk da cewa, lokacin da ta tsinci kanta ta nufi dakin gaggawa.

"Cutar cututtukan haihuwa na mata kamar sun mamaye wasu batutuwa a cikin maƙwabta," in ji Curry, wanda zai ci gaba da samun ƙarin shekaru da yawa na ziyarar ER don ciwon ƙugu wanda aka gano ba daidai ba kamar yadda IBS ko wasu batutuwa masu alaƙa da GI.

Tun da endometriosis yana haifar da nama mai kamala yayi girma kuma ya bazu a wajen yankin ƙashin ƙugu, abubuwan da suka shafi jiki kamar su ƙwai da hanji suna fuskantar canjin yanayin lokacin mace, suna haifar da kumburi mai raɗaɗi.

Kuma idan alamun naku suna da rikitarwa kuma suka zauna a sassan jikinku a waje da tsarin haihuwar ku, Curry ya ce, yanzu zakuyi ma'amala da ma da ƙwararru.

Yarda da ra'ayoyi marasa kyau

Hakikanin abubuwan da ke haifar da endometriosis har yanzu ba a iya fahimta ba. Amma daya daga cikin ka'idojin farko ya nuna cewa ya sauka ne ga abin da aka sani da jinin haila - tsari ne da ya hada da jinin haila da ke kwarara ta cikin bututun fallopian zuwa cikin ramin gabobi maimakon barin ta cikin farji.

Kodayake ana iya gudanar da yanayin, ɗayan mawuyacin yanayi a farkon cutar ba shi karɓar ganewar asali ko magani. Har ila yau akwai rashin tabbas da fargabar rashin samun sauki.

Dangane da binciken da aka gabatar kwanan nan wanda HealthyWomen na sama da mata 1,000 da 352 na kwararrun masu kiwon lafiya (HCPs), zafi a lokacin da tsakanin lokuta sune manyan alamomin da suka sa yawancin masu amsa tambayoyin suka ziyarci HCP don samun ganewar asali. Dalilai na biyu da na uku sun hada da al'amuran ciki, zafi yayin jima'i, ko motsin hanji mai raɗaɗi.

Masu binciken sun gano cewa yayin da mata 4 a cikin 5 wadanda ba su da wata cuta ta hakika sun ji labarin endometriosis a da, da yawa kawai suna da iyakantaccen sanin abin da waɗannan alamun suke kama. Mafi yawansu sun yi imani alamun sun hada da zafi tsakanin da yayin lokuta da kuma yayin saduwa. Kadan ne suka san sauran alamun, kamar su gajiya, lamuran ciki, fitsari mai raɗaɗi, da motsin hanji mai raɗaɗi.

Arin haske, har yanzu, shine gaskiyar cewa kusan rabin mata ba tare da wata cuta ba ba su da masaniya babu magani.

Wadannan sakamakon binciken sun nuna babbar matsala dangane da yanayin. Duk da yake an san sanannun cututtukan endometriosis fiye da kowane lokaci, har yanzu ba a fahimtarsa ​​sosai, har ma da mata suna da ganewar asali.

Hanyar m zuwa ganewar asali

Wani binciken da wata kungiyar masu bincike suka gudanar a Burtaniya ya nuna cewa yayin da dalilai da dama za su iya taka rawa, "wata muhimmiyar dalili da ke haifar da ci gaban wannan cutar na iya zama jinkirin ganowa."

Kodayake yana da wahala a iya tantance ko hakan na faruwa ne saboda rashin isassun bincike na likitanci, saboda alamun na iya yin kwaikwayon wasu yanayi kamar kwayayen kwan mace da cutar kumburin ciki, abu daya ya bayyana karara: Karbar ganewar asali ba karamin abu bane.

Philippa Bridge-Cook, masaniyar kimiyya a Toronto wacce ke aiki a kwamitin gudanarwa na The Endometriosis Network Canada, ta tuna cewa likitinta na dangi sun fada mata a tsakaninta da 20s cewa babu wani amfani da za a ci gaba da bincikar cutar saboda babu wani abu da za a iya yi game da endometriosis ko ta yaya. "Wanne ba gaskiya bane ba shakka, amma ban san hakan a lokacin ba," in ji Bridge-Cook.

Wannan kuskuren bayanin zai iya yin bayanin dalilin da ya sa kusan rabin matan da ba a gano su ba a cikin binciken na HealthyWomen ba su da masaniya game da yadda ake gano cutar.

Daga baya, bayan Bridge-Cook ta sami ɓarna da yawa, ta ce OB-GYNs guda huɗu daban-daban sun gaya mata cewa ba za ta iya yiwuwa ta kamu da cutar ba, domin idan ta yi hakan, za ta sami rashin haihuwa. Har zuwa lokacin, Bridge-Cook ta yi ciki ba tare da wahala ba.

Duk da yake gaskiya ne cewa al'amuran haihuwa suna daya daga cikin mawuyacin rikitarwa da ke da alaƙa da endo, wani kuskuren fahimta shi ne cewa zai hana mata yin ciki da ɗaukar jariri zuwa lokaci.

Gwanin Bridge-Cook ya bayyana ba kawai rashin wayewa a madadin wasu HCP ba, har ma rashin hankali game da yanayin.

La'akari da cewa daga cikin mutane 850 masu binciken, kusan kashi 37 cikin dari ne suka gano kansu a matsayin masu cutar ta endometriosis, tambayar ta kasance: Me yasa karɓar ganewar asali ta zama hanya mai wahala ga mata?

Amsar tana iya kasancewa cikin jinsinsu.

Duk da cewa 1 cikin mata 4 a cikin binciken sun ce cutar endometriosis tana yawan kutsawa cikin rayuwar su ta yau da kullun - inda 1 cikin 5 ke cewa hakan koyaushe tana yi - ana yawan watsar da wadanda suka kai rahoton alamun su ga HCP. Binciken ya kuma gano cewa kashi 15 cikin 100 na mata an fada musu "Komai a cikin kanku yake," yayin da aka ce 1 cikin 3 ya ce "Yana da kyau." Bugu da ƙari kuma, an gaya wa wani 1 a cikin 3 "Yana daga cikin kasancewa mace," kuma 1 a cikin 5 mata dole ne su ga HCP huɗu zuwa biyar kafin karɓar ganewar asali.

Wannan yanayin ba abin mamaki bane ganin cewa ba a kula da zafin mata sau da yawa ko a bayyane a cikin masana'antar kiwon lafiya. Studyaya daga cikin binciken ya gano cewa "Gabaɗaya, mata suna ba da rahoton tsananin ciwo, yawan aukuwar ciwo, da kuma zafi na tsawon lokaci fiye da maza, amma duk da haka ana bi da su don rashin ciwo mai tsanani."

Kuma galibi saboda wannan son zuciya ne da yawancin mata ba za su nemi taimako ba har sai alamunsu sun kai wani matakin da ba za a iya jurewa ba. Yawancin masu binciken sun jira shekaru biyu zuwa biyar kafin su ga HCP don alamun, yayin da 1 a cikin 5 ya jira shekaru huɗu zuwa shida.

McGaughey, wacce ta ce ta fahimci cewa likitoci ba sa son wani ya dogara ga opioids ko rikita hanta ko ciki tare da maganin rigakafin cutar. "Amma wannan ya bar mata da 'yan mata da yawa cikin matsanancin ciwo," in ji ta. "Don haka mai tsanani ba za ku iya tafiya ba, (tare da tunanin mutane da yawa) ya kamata su ɗauki Advil guda biyu kawai."

Bincike ya tallafa mata a kan wannan - kamar yadda wani ya ruwaito cewa mata ba za a iya ba su maganin jin zafi a cikin ER ba, duk da tsananin ciwon ciki.

Wani ɓangare na matsalar ya sauka ne ga mata da 'yan mata masu imani, McGaughey ya ƙara da cewa. Ta tuna gaya wa likita cewa tana fuskantar mummunan ciwo tare da lokaci, amma hakan bai yi rajista ba. Sai kawai lokacin da ta bayyana cewa yana haifar mata da rasa kwanaki da yawa na aiki a kowane wata sai likita ya saurara kuma ya lura.

"Tun daga wannan lokacin, na ƙididdige yawan ciwon da nake fama da shi ga ƙwararru a kwanakin da ba a yi aiki ba," in ji ta. "Wannan yana da ƙima fiye da kawai gaskata abubuwan da na yi na kwanakin wahala."

Dalilai na yin watsi da zafin mata suna lulluɓe ne cikin ƙa'idodin jinsi na al'adu, amma kuma, kamar yadda binciken ya nuna, "babban rashin fifiko na endometriosis a matsayin muhimmin batun lafiyar mata."

Rayuwa bayan bincike

McGaughey ta daɗe bayan kammala karatun ta na kwaleji, ta ce ta ɓata lokaci mai yawa don jin zafin ta. "Yana keɓewa ne da damuwa da kuma ban sha'awa."

Tana tunanin yadda rayuwarta zata kasance idan bata da cutar. Ta ce, "Na yi matukar sa'a da samun 'yata, amma ina mamakin ko zan iya yin kokarin neman haihuwa ta biyu idan ba ni da cutar endometriosis," in ji ta, wacce ta jinkirta daukar ciki tsawon shekaru na rashin haihuwa kuma ta kai ga yin tiyata . "[Yanayin] ya ci gaba da rage kuzari ta hanyar da ta sa yaro na biyu ya zama kamar ba za a iya samunsa ba."

Hakanan, Bridge-Cook ta ce ɓatar da lokaci tare da iyalinta lokacin da take fama da ciwo da yawa don tashi daga gado shine mafi mawuyacin ɓangaren kwarewarta.

Sauran kamar Curry suna da'awar babban gwagwarmaya shine rikicewa da rashin fahimta. Duk da haka, tana nuna godiya ga koyon halin da take ciki tun da wuri. "Na yi sa'a, a cikin shekaru ashirin, cewa na farko OB-GYN da ake zargi endometriosis da kuma yi a Laser sokewa tiyata." Amma, ta ƙara da cewa, wannan ya zama banda ga ƙa’idar, saboda yawancin halayen HCP nata na rashin fahimta ne. "Na san na yi fice kuma yawancin mata masu fama da cutar endo ba su da sa'a."

Yayinda aikin tabbatar da mata su kasance masu cikakken bayani game da yanayin ya kasance akan HCPs, McGaughey ya jaddada mata yakamata suyi nasu binciken kuma suyi wa kansu shawarwari. "Idan likitanka bai yarda da kai ba, sami sabon likita," in ji McGaughey.

Hakazalika da fiye da rabin masu amsa tambayoyin waɗanda kuma aka gano ta wani OB-GYN, Curry ta endo tafiya ya yi nisa da kan. Ko da bayan an gano ta da kuma aikin tiyata, ta ci gaba da ciyar da shekaru 20 masu zuwa don neman amsoshi da taimako.

"Yawancin likitocin mata ba sa magance cututtukan endometriosis sosai yadda ya kamata," in ji Bridge-Cook, wacce ta jira shekaru 10 daga lokacin da ta fara zargin wani abu ba daidai ba a shekarunta na 20 kafin ta sami ganewar asali. Ta ce, "Tiyatar cire ciki tana da alaƙa da saurin sake dawowa," in ji ta, "amma aikin tiyatar cire ciki, wanda yawancin likitocin mata ba sa yi, ya fi tasiri sosai don sauƙin bayyanar cututtuka."

Kwanan nan ta goyi bayanta a kan wannan, yayin da masu bincike suka sami ci gaba mafi girma a cikin raɗaɗin raɗaɗin raɗaɗin da ke faruwa sakamakon cututtukan endometriosis sakamakon fitowar laparoscopic idan aka kwatanta da cirewa.

Dangane da Bridge-Cook, haɗa haɗaɗɗun hanyoyin kulawa da yawa yana ba da kyakkyawan sakamako. Ta yi amfani da haɗin aikin tiyata, rage cin abinci, motsa jiki, da kuma gyaran jiki na pelvic don neman sauƙi. Amma kuma ta gano cewa yoga ya kasance da kima don magance damuwar da ke zuwa daga rayuwa tare da rashin lafiya mai tsanani.

Kodayake McGaughey ta lura cewa duka aikin tiyatarta na da matukar tasiri wajen rage radadin nata da kuma dawo da martabar rayuwarta, amma tana da yakinin cewa babu irin abubuwan da suka faru iri daya. "Labarin kowa daban ne."

Ta ce "Ba kowa ne zai iya yin aikin tiyata mai inganci ba ta hanyar likitocin da aka horar da su don ganowa da fitar da cututtukan endometriosis," in ji ta, kuma wasu mutane sun fi saurin kamuwa da tabon fata fiye da wasu. Rage lokaci don yin bincike ta hanyar hanyar rashin ganewar asali, in ji ta, na iya yin bambanci.

Shawara don kulawa mafi kyau

Ta yaya HCP ke kula da matan da ke fama da ciwo daidai yake, idan ba ƙari ba, mahimmanci ga yadda suke magance yanayin kanta. Kasancewa da lura da waɗannan nuna bambancin jinsi shine matakin farko, amma na gaba ya ƙunshi samun wayewar kai da sadarwa tare da tausayawa.

Wata muhimmiyar nasara a cikin tafiya ta ƙarshen Curry ta isa jim kaɗan bayan haɗuwa da likita wanda ba kawai mai ilimi bane, amma kuma mai tausayi. Lokacin da ya fara yi mata tambayoyi wadanda basu da alaƙa da cutar rashin lafiya wanda babu wani likita a cikin shekaru 20, sai ta fara kuka. "Na ji sauƙi nan take da kuma tabbatarwa."

Yayinda aikin tabbatar da mata su kasance masu cikakken bayani game da yanayin ya kasance akan HCPs, McGaughey ya jaddada mata yakamata suyi nasu binciken kuma suyi wa kansu shawarwari. Tana ba da shawarar yin tuntuɓar likitocin tiyata, shiga ƙungiyoyi masu ƙarancin ra'ayi, da karatun littattafai kan batun. "Idan likitanka bai yarda da kai ba, sami sabon likita," in ji McGaughey.

"Kada ku jira shekaru cikin zafi kamar na yi saboda tsoron aikin gano laparoscopic." Ta kuma ba da shawarar cewa mata su ba da shawara don jin zafi da suka cancanci, kamar Toradol mai ban sha'awa.

Baya ga neman amsa na shekaru da yawa, waɗannan matan suna da kyakkyawar sha'awar ƙarfafa wasu. Curry ya ce: "Yi magana game da ciwonka kuma ka ba da cikakkun bayanan nitty-gritty," "Kana bukatar ka kawo hanjinka, azaba mai zafi, da kuma matsalolin mafitsara."

Ta kara da cewa "Abubuwan da ba wanda yake son magana game da shi na iya zama mabuɗin hanyoyin ganowarka da hanyar kulawa,"

Abu daya da aka bayyana a fili daga binciken HealthyWomen shine cewa fasaha na iya zama babbar kawar mace idan yazo da sanarwa. Sakamakon ya nuna cewa yawancin matan da ba a gano su ba suna son ƙarin koyo game da cututtukan endometriosis ta hanyar imel da intanet - kuma wannan ya shafi har ma ga waɗanda aka gano kuma ba su da sha'awar ƙarin karatu.

Amma kuma ana iya amfani dashi azaman hanyar haɗi tare da wasu a cikin ƙungiyar endo.

Duk da yawan shekaru na takaici da rashin fahimta, kayan azurfa guda daya da aka saka wa Curry shine matan da ta hadu da su wadanda suke tafiya iri daya. "Suna tallafawa kuma kowa yana son ya taimaki juna ta kowace hanya da za su iya."

Curry ya ce "Ina tsammanin yanzu da mutane da yawa sun san endometriosis yana da sauƙi a yi magana game da shi." "Maimakon ka ce ba ka da lafiya saboda 'zafin mata' za ka iya cewa 'Ina da cututtukan endometriosis' kuma mutane sun sani."

Cindy Lamothe 'yar jarida ce mai zaman kanta da ke zaune a Guatemala. Tana rubutu sau da yawa game da haɗuwa tsakanin lafiya, ƙoshin lafiya, da ilimin ɗabi'ar ɗan adam. An rubuta ta ne ga The Atlantic, New York Magazine, Teen Vogue, Quartz, The Washington Post, da sauran su. Nemi ta a cindylamothe.com.