Duk abin da kuke buƙatar sani game da ADPKD

Wadatacce

• Kwayar cutar ADPKD
• Jiyya na ADPKD
• Sakamakon sakamako na jiyya don ADPKD
• Nunawa don ADPKD
• Ganewar asali na ADPKD
• Dalilin ADPKD
• Rikitarwa
• Tsammani na rayuwa da hangen nesa

Autosomal rinjaye polycystic koda cuta (ADPKD) wani mummunan yanayi ne wanda ke haifar da mafitsara su girma a cikin kodan.

Cibiyar kula da cututtukan sikari da cututtukan narkewar abinci da koda sun bayar da rahoton cewa ya shafi kimanin mutum 1 cikin 400 zuwa 1,000.

Karanta don ƙarin koyo game da shi:

• bayyanar cututtuka
• haddasawa
• jiyya

Kwayar cutar ADPKD

ADPKD na iya haifar da alamu iri-iri, gami da:

• ciwon kai
• ciwo a bayanku
• zafi a cikin bangarorinku
• jini a cikin fitsarinku
• ƙara girman ciki
• jin cikar ciki

Kwayar cututtuka sau da yawa suna tasowa a lokacin balaga, tsakanin shekara 30 zuwa 40, ko da yake kuma suna iya bayyana a cikin manyan shekaru. A wasu lokuta, bayyanar cututtuka na bayyana a yarinta ko samartaka.

Kwayar cututtukan wannan yanayin suna daɗa muni a kan lokaci.

Jiyya na ADPKD

Babu sanannen magani ga ADPKD. Koyaya, ana samun magunguna don taimakawa sarrafa cututtukan da haɗarin sa.

Don taimakawa jinkirin ci gaban ADPKD, likitanku na iya ba da umarnin tolvaptan (Jynarque).

Shine magani kawai wanda Hukumar Abinci da Magunguna (FDA) ta amince musamman don magance ADPKD. Wannan magani na iya taimakawa jinkiri ko hana gazawar koda.

Dangane da takamaiman yanayinka da buƙatun magani, likitanka na iya ƙara ɗaya ko fiye daga cikin masu zuwa zuwa shirin kulawa:

• sauye-sauyen rayuwa don taimakawa rage hawan jini da inganta lafiyar koda
• magani don taimakawa rage hawan jini, sauƙaƙa zafi, ko magance cututtukan da ka iya faruwa a kodan, wurin fitsari, ko wasu yankuna
• tiyata don cire kumburin da ke haifar da ciwo mai tsanani
• shan ruwa a ko'ina cikin yini da kuma guje wa maganin kafeyin don rage saurin kumburin (masu bincike suna nazarin yadda hydration ke shafar ADPKD)
• cin ƙananan ƙananan furotin mai inganci
• iyakance gishiri, ko sodium, a cikin abincinku
• guje wa yawan sinadarin potassium da sinadarin phosphorous a cikin abincinku
• iyakance yawan shan barasa

Gudanar da ADPKD da mannewa tare da shirin maganin ka na iya zama kalubale, amma yana da mahimmanci don rage ci gaban cutar.

Idan likitanku ya ba da umarnin tolvaptan (Jynarque), kuna buƙatar yin gwaje-gwaje na yau da kullun don tantance lafiyar hanta saboda magani na iya haifar da lalata hanta.

Hakanan likitanka zai kula da lafiyar kodarka sosai don ganin idan yanayin ya daidaita ko ci gaba.

Idan ka sami ciwan koda, za a bukaci karbar wankin koda ko dashen koda don biyan asarar aikin koda.

Yi magana da likitanka don ƙarin koyo game da zaɓuɓɓukan maganinku, gami da fa'idodi masu fa'ida, haɗari, da tsadar hanyoyin magance magunguna daban-daban.

Sakamakon sakamako na jiyya don ADPKD

Mafi yawan magungunan da likitanka zai iya dubawa don taimakawa ko kula da ADPKD yana ɗauke da haɗarin illa.

Misali, Jynarque na iya haifar da yawan jin ƙishirwa, yawan yin fitsari, da kuma wasu lokuta, mummunar cutar hanta. Akwai rahotanni game da mummunan hanta na hanta wanda ke buƙatar dashen hanta a cikin mutanen da ke shan Jynarque.

Sauran jiyya waɗanda ke ƙaddamar da takamaiman alamun cutar ADPKD na iya haifar da sakamako masu illa. Don ƙarin koyo game da tasirin illa daban-daban na jiyya, yi magana da likitanka.

Idan kuna tunanin wataƙila kun sami sakamako masu illa daga magani, sanar da likitanka nan take. Suna iya bayar da shawarar canje-canje ga shirin maganin ku.

Hakanan likitanku na iya yin odar gwaje-gwaje na yau da kullun yayin da kuke shan wasu jiyya don bincika alamun lalacewar hanta ko wasu lahanin.

Nunawa don ADPKD

Polycystic koda cuta (PKD) cuta ce ta kwayar halitta.

Ana samun gwajin DNA, kuma akwai nau'ikan gwaje-gwaje iri biyu:

• Gwajin haɗin mahaɗi. Wannan gwajin yana nazarin wasu alamomi a cikin DNA na membobin gidan da suke da PKD. Yana buƙatar samfuran jini daga gareku harma da membersan uwa da yawa waɗanda cutar ta shafa da waɗanda PKD ba ta shafa ba.
  
• Binciken kai tsaye na maye gurbi / jerin DNA. Wannan gwajin yana buƙatar samfurin guda ɗaya kawai daga gare ku. Kai tsaye yana nazarin DNA na kwayoyin PKD.

Ganewar asali na ADPKD

Don bincika ADPKD, likitanku zai tambaye ku game da:

• alamominka
• tarihin lafiyar mutum
• tarihin lafiyar iyali

Suna iya yin odar duban dan tayi ko wasu gwaje-gwajen hotunan don bincika cysts da sauran dalilan da ke haifar da alamunku.

Hakanan zasu iya yin odan gwajin kwayoyin don koyo idan kana da maye gurbi wanda ke haifar da ADPKD. Idan kuna da kwayar cutar da abin ya shafa kuma kuna da yara, suna iya ƙarfafa su su ma su gwada kwayoyin.

Dalilin ADPKD

ADPKD yanayi ne na gado.

A mafi yawan lokuta, ana samu ne daga maye gurbi na kwayar PKD1 ko kwayar PKD2.

Don haɓaka ADPKD, dole ne mutum ya kasance yana da kwafin kwayar cutar da abin ya shafa. Yawancin lokaci suna gado ne daga ɗayan iyayensu, amma a wasu lokuta mawuyacin yanayi, maye gurbin kwayoyin halitta na iya faruwa kwatsam.

Idan kana da ADPKD kuma abokin tarayya ba shi da shi kuma ka yanke shawarar fara iyali tare, 'ya'yanka za su sami damar kashi 50 cikin ɗari na cutar.

Rikitarwa

Hakanan yanayin yana sanya ku cikin haɗari don rikitarwa, kamar:

• hawan jini
• cututtukan fitsari
• cysts a cikin hanta ko pancreas
• ƙananan bawul na zuciya
• ƙwaƙwalwar ƙwaƙwalwa
• gazawar koda

Tsammani na rayuwa da hangen nesa

Tsammani na rayuwar ku da hangen nesa tare da ADPKD ya dogara da dalilai da yawa, gami da:

• takamaiman maye gurbi wanda ke haifar da ADPKD
• duk wata matsala da kuka taso
• Magungunan da kuka karɓa da kuma yadda kuke jingina ga shirin maganinku
• cikakkiyar lafiyar ku da salon rayuwar ku

Yi magana da likitanka don ƙarin koyo game da yanayinku da hangen nesa. Lokacin da aka bincikar ADPKD da wuri kuma aka gudanar da shi yadda ya kamata, mutane za su iya ci gaba da rayuwa mai cikakken ƙarfi.

Misali, mutane da yawa tare da ADPKD waɗanda har yanzu suke aiki lokacin da aka gano su suna iya ci gaba da ayyukansu.

Yin aiki da halaye masu kyau da kuma bin tsarin likitanku na likitanci na iya taimakawa wajen hana rikitarwa da kiyaye lafiyar koda da lafiya na dogon lokaci.