Shekarar Farko tare da MS

Wadatacce

• Marie Robidoux
• Janet Perry
• Doug Ankerman
• Takeaway

Koyon kuna da cutar sclerosis da yawa (MS) na iya haifar da kalaman motsin rai. Da farko, kuna iya samun kwanciyar hankali cewa kun san abin da ke haifar da alamunku. Amma fa, tunanin zama naƙasasshe da yin amfani da keken hannu yana iya ba ka tsoro game da abin da ke gaba.

Karanta yadda mutane uku tare da MS suka sami shiga shekarar farko kuma har yanzu suna rayuwa cikin ƙoshin lafiya, rayuwa mai amfani.

Marie Robidoux

Marie Robidoux tana da shekaru 17 lokacin da ta kamu da cutar ta MS, amma iyayenta da likitanta sun rufa mata asiri har zuwa ranar haihuwar ta 18. Ta yi fushi da takaici.

"Na yi matukar bakin ciki lokacin da daga karshe na fahimci ina da cutar MS," in ji ta. “Ya dau shekaru kafin na samu kwanciyar hankali na fadawa kowa cewa ina da cutar ta MS. Ya ji kamar irin wannan ƙyamar. [Ya ji] kamar na kasance mai fara'a, wani wanda zan nisanta, don gujewa. ”

Kamar sauran mutane, shekararta ta farko tayi wahala.

"Na shafe watanni ina ganin sau biyu, galibi na rasa yadda ake amfani da kafafuna, suna da lamuran daidaitawa, duk yayin kokarin shiga kwaleji," in ji ta.

Saboda Robidoux ba ta da wani tsammanin cutar, sai ta ɗauka cewa "hukuncin kisa ne." Ta yi tunanin cewa, a mafi kyau, za ta ƙare a wurin kulawa, ta amfani da keken hannu, kuma gaba ɗaya ta dogara ga wasu.

Tana fatan da ta san cewa MS ta shafi kowa daban. A yau, ta ɗan rage mata motsi ne kawai, ta amfani da sanda ko takalmin kafa don taimaka mata tafiya, kuma tana ci gaba da aiki cikakken lokaci.

"Na iya daidaitawa, wani lokacin duk da kaina, ga dukkan kwallayen da MS ta jefa ni," in ji ta. "Ina jin dadin rayuwa kuma ina jin daɗin abin da zan iya yayin da zan iya."

Janet Perry

Janet Perry ta ce: "Ga mafi yawan mutanen da ke da cutar ta MS, akwai alamun, galibi ba a kula da su, amma alamu ne kafin hakan," "A wurina, wata rana na kasance cikin koshin lafiya, sannan na kasance cikin rikici, na kara muni, kuma a asibiti cikin kwanaki biyar."

Alamar ta na farko ta kasance ciwon kai, sai kuma jiri. Ta fara gudu zuwa cikin ganuwar, kuma ta sami hangen nesa biyu, rashin daidaito, da kuma rauni a gefen hagu. Ta tsinci kanta da kuka kuma a cikin wani yanayi na rashin jini ba gaira ba dalili.

Duk da haka, lokacin da aka gano ta, jin daɗinta na farko shi ne jin daɗi. A baya likitocin sun yi tunanin harin MS na farko da ya kamu da cutar shanyewar barin jiki.

"Ba ta kasance hukuncin kisa ba ne," in ji ta. “Za a iya magance ta. Zan iya rayuwa ba tare da wannan barazanar a kaina ba. ”

Tabbas, hanyar da ke gaba ba sauki. Dole ne Perry ta sake koyon yadda ake tafiya, yadda ake hawa matakala, da kuma yadda ake juya kai ba tare da jin annurin kai ba.

Ta ce "Na gaji da komai fiye da komai," in ji ta. “Ba za ku iya yin watsi da abubuwan da ba sa aiki ba ko kuma waɗanda ke yin aiki idan kuna tunani a kansu. Wannan yana tilasta muku ku sani kuma a halin yanzu. ”

Ta koya zama mai hankali, tunani game da abin da jikinta zai iya da wanda ba zai iya yi ba.

"MS wata cuta ce ta son rai kuma saboda ba za a iya yin hasashen hare-hare ba, yana da kyau a shirya gaba," in ji ta.

Doug Ankerman

"Tunanin MS ya cinye ni," in ji Doug Ankerman. "A wurina, cutar MS ta fi mini rauni fiye da jikina."

Babban likitan farko na Ankerman ya yi zargin cewa MS bayan da ya yi korafin suma a hannunsa na hagu da taurin kai a ƙafarsa ta dama. Gabaɗaya, waɗannan alamomin sun kasance masu daidaituwa a farkon shekarar sa, wanda ya bashi damar ɓoyewa daga cutar.

"Ban fada wa iyayena na kimanin watanni shida ba," in ji shi. “Lokacin ziyartar su, nakan shiga cikin gidan wanka don yin harbi sau ɗaya a mako. Na yi kyau, don haka me ya sa za a raba labarai? ”

Idan ya waiwaya baya, Ankerman ya fahimci cewa ƙaryatãwa game da cutar sa, kuma “tura shi da kyau cikin kabad,” kuskure ne.

"Ina jin na rasa shekaru biyar zuwa shida a rayuwata na buga wasan musantawa," in ji shi.

A cikin shekaru 18 da suka gabata, yanayinsa a hankali ya ragu. Yana amfani da kayan motsa jiki da yawa, gami da sanduna, sarrafawar hannu, da keken guragu don zagayawa. Amma ba ya barin waɗannan ratayewa sun rage masa hankali.

"Yanzu ina kan gaba tare da MS na wanda ya firgita ni lokacin da aka fara gano ni, kuma na fahimci cewa ba haka ba ne," in ji shi. "Na fi wasu da yawa da MS kuma ina godiya."

Takeaway

Yayinda MS ke shafar kowa daban, da yawa suna fuskantar gwagwarmaya iri ɗaya da tsoro a cikin shekarar farko bayan ganewar asali. Zai iya zama da wahala a sami daidaito game da ganewar ku kuma koya yadda ake daidaita rayuwa tare da MS. Amma waɗannan mutane uku sun tabbatar da cewa zaku iya wucewa daga rashin tabbas da damuwa na farko, kuma ku wuce abubuwan da kuke tsammani na gaba.