Jiyya don nemaline myopathy

Wadatacce

• Alamomin cutar nemaline myopathy
• Alamomin ci gaba a nemaline myopathy
• Alamomin cutarwar nemaline myopathy

Ya kamata maganin likitan yara na nemaline myopathy ya zama jagora daga likitan yara, game da jariri da yaro, ko kuma likitan kashi, a game da babba, ana yin shi ba don warkar da cutar ba, amma don sauƙaƙawa da magance alamun, inganta ingancin rayuwa.

Yawancin lokaci, ana farawa magani tare da zaman motsa jiki don taimakawa ƙarfafa tsokoki waɗanda suka raunana ta hanyar yin takamaiman atisaye wanda ya dace da likita.

Bugu da kari, kuma dangane da alamun alamun da zasu iya bayyana, ana iya yin magani tare da:

• Amfani da CPAP: na'ura ce da ke da abin rufe fuska da aka yi amfani da ita a cikin tsaka-tsakin yanayi da masu tsanani don sauƙaƙa numfashi, musamman yayin bacci. Ara koyo a: CPAP;
• Keken guragu amfani: ya zama dole a yanayin rashin lafiyar nemaline wanda ke haifar da wahala a tafiya saboda rauni na jijiyoyin kafa;
• Jeri na gastrostomy bututu: ya ƙunshi ƙaramin bututu wanda aka saka kai tsaye zuwa cikin ciki wanda ke ba da damar ciyarwa a cikin mawuyacin hali;
• Shan maganin rigakafi: ana amfani da su a wasu lokuta don magance cututtukan numfashi, irin su ciwon huhu, waɗanda suke yawaita saboda matsalolin numfashi da ƙwayar cuta ke haifarwa.

A cikin mawuyacin hali, yana iya zama dole a ci gaba da zama a asibiti don yin maganin da ya dace da kuma guje wa matsaloli masu tsanani, kamar kamawar numfashi, wanda ke sa rayuwar mai haƙuri cikin haɗari.

Alamomin cutar nemaline myopathy

Babban alamun bayyanar cutar nemaline myopathy sun hada da:

• Raunin tsoka, musamman a hannu da kafafu;
• Wahalar numfashi ko haɗiyewa;
• Ci gaban jinkiri;
• Wahalar tafiya.

Baya ga wadannan alamun, kuma abu ne na yau da kullun ga wasu siffofi da za su bayyana, kamar su siririyar fuska, kunkuntar jiki, bayyanar bude baki, kafa mara kyau, kirji mai zurfin gaske da ci gaban scoliosis ko osteoporosis.

Kwayar cutar galibi kan bayyana ba da daɗewa ba bayan haihuwa saboda cuta ce ta kwayar halitta, amma a wasu lokuta, alamomin na farko kan iya tasowa ne tun lokacin da suka balaga.

Ya ganewar asali na nemalitic myopathy ana yin sa ne tare da nazarin tsoka lokacin da akwai alamun alamun zato game da cutar, musamman lokacin da jinkirin haɓaka da rauni na tsoka a koyaushe suka bayyana.

Alamomin ci gaba a nemaline myopathy

Babu alamun ci gaba a nemaline myopathy, tunda cutar bata inganta. Koyaya, ana iya gyara alamomin tare da magani, wanda ke ba da kyakkyawar rayuwa.

Alamomin cutarwar nemaline myopathy

Alamomin cutarwar namaline myopathy suna da alaƙa da rikitarwa, kamar cututtuka da kamuwa da numfashi, sabili da haka sun haɗa da zazzaɓi sama da 38ºC, ƙarar wahalar numfashi, numfashi mai ƙaranci, yatsun hannu da fuska.