Haɗu da Matar Bayan #SelfExamGram, Wata Harkar Ƙarfafa Mata Masu Ƙarfafa Jarrabawar Nono Na Wata-wata.

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Allyn Rose tana da shekaru 26 kawai lokacin da aka yi mata mastectomy biyu da sake gina nono. Amma ba ta zaɓi waɗannan hanyoyin ba saboda sanadin cutar sankarar mama. Ta zaɓe su a matsayin ma'aunin kariya bayan ta rasa mahaifiyarta, kakarta, kuma babbar goggo ga cutar. Wannan shine farkon farkon balaguronta na ba da shawara kan cutar kansa.

"[Ya fara ne a cikin] Disamba na bara," in ji Allyn Siffa. "Ina zaune a gida ni kaɗai ina tunanin, 'Menene wani abu da zan iya yi da gaske na motsa matasa su kasance masu ƙwazo a cikin kula da lafiyarsu?'"

Yanzu, a farkon kowane wata, Allyn yana ɗaukar hoto a Instagram tare da hoton selfie da hashtag: #SelfExamGram. Kowane post yana zama tunatarwa kowane wata ga mata game da mahimmancin jarrabawar nono da sanin abin da ke “al’ada” ga jikin ku.

Sha'awar Allyn game da bayar da shawarwarin kiwon lafiya ta zo daga babban mahaifiyarta, sadaukarwar Judy don rayuwa mai ƙarfi, salon lafiya. Bayan da Judy ta rasa ciwon nono sa’ad da Allyn take ’yar shekara 16, Allyn ta ƙudurta ci gaba da sha’awar mahaifiyarta.

Allyn ta ce "Mahaifiyata ta kasance mai kwazo sosai game da lafiyarta." "[Kafin a gano ta tana da cutar sankarar mama,] ta ci gaba da zuwa wurin likita tana cewa, '' Akwai wani abu. '' Ita ce ‘yar tseren gudun fanfalaki, kuma tana jin dugu-duguwa, ba ta samun sauki kamar yadda ta yi a da, sai likitan ya ce, ‘Kai kun yi kankanta da ciwon daji, ku dawo ku ganmu nan da wata shida. . '"(Mai Dangantaka: Yaya Matasa Zaku Iya Samun Ciwon Nono?)

A lokacin da Judy ta koma wurin likita, tana da kumburin "ƙwallon golf" a ƙirjinta. An gano ta tana da ciwon nono mataki-uku tana da shekara 27.

"Ta kori duk ƙungiyar likitocin ta, ta je ɗakin karatun likita a harabar kwalejin ta, ta yi karatu, sannan ta koma ga likita tana cewa, 'Ina son wannan, wannan, da wannan. Ga shirin kai hari na,'" in ji Allyn. "Kuma ta doke wannan mummunan ciwon nono."

Abin takaici, ciwon nono na Judy ya dawo shekaru bayan haka lokacin da Allyn ta kasance matashi. Allyn ta ce "Har ila yau, ta ci gaba da kamuwa da cutar sankarar nono.

Lokacin da Allyn ke da shekaru 18, mahaifinta ya kawo ra'ayin hana mastectomy biyu. "Da kawai na haɓaka cikin jikin da nake da shi. Na yi tunani, 'Me yasa jahannama zan yi irin wannan? Ni ɗan shekara 18 ne kawai.' Amma mahaifina ya dube ni a fuska, ya ce, 'Za ka mutu kamar mahaifiyarka, kana bukatar ka kara kaimi game da wannan domin ba mutum daya ba ne, ba mutum biyu ba ne; mutane da yawa ne a cikin iyalinka. , kuma wannan shine gaskiyar ku da rashin tausayi."

Kodayake Allyn da dangin ta sun gwada rashin kyau don maye gurbi na ƙwayar cuta ta BRCA (haɗarin gama gari ga kansar nono), har yanzu likitanta ya ƙarfafa ta da ta yi la'akari da rigakafin mastectomy biyu. "Likita ya ce, 'Ba ku da canjin halittar BRCA, amma wataƙila kuna da wani abu da ba za mu iya gwadawa ba tukuna,'" in ji Allyn. Ta ɗauki shekaru da yawa don yin tunani sosai game da shawarar, amma idan aka ba da tarihin lafiyar iyalinta, gaskiyar cewa mahaifiyarta ta kamu da cutar sankarar nono tun tana ƙarami, da ƙarfafawa likita, Allyn ta ce a ƙarshe ta yi wa kanta zaɓi mai kyau. "An yi min tiyata kuma da gaske ban taba waiwaya baya ba," in ji ta.

Hakika, kowane mutum ya bambanta. Duk da cewa shawarar Allyn ta ɗauke ta a cikin ƙarancin jagora, mafi kyawun aikin gabaɗaya shine bin ƙa'idodin gwajin kansar nono tare da tuntuɓi likita game da mafi kyawun zaɓuɓɓukan da ake da su.

Allyn, tsohuwar ‘yar takarar Miss America, ta yarda cewa ta sha suka saboda shawarar da ta yanke na yin tiyatar. Ta ce "Mutane [a cikin jama'ar wasan kyau] sun yi fushi da gaske cewa za a yi min tiyata kamar haka," in ji ta. "Kuma maza suna rubuto mani suna cewa, 'Yaya za ka yanke jikinka?'

Duk da haka, ta ce abubuwan da suka dace sun yi nisa fiye da rashin kyau. "Kowace rana, ina samun wani sako daga wani wanda ya ce, 'Ni matashi ne, ban san zan iya (samun maganin mastectomy ba)' ko ma, 'Na tsufa, kuma ba ni da ƙarfin hali don yin hakan; da gaske kuna ba ni dalili, '"in ji ta. "Ina jin kamar aikina ne in raba sakon."

A kwanakin nan, Allyn yana yada wannan saƙon ta hanyoyi da yawa. Ta hanyar #SelfExamGram, tana taimaka wa mata su sami kwanciyar hankali wajen yin gwajin nono akai -akai. "[Gwajin kai na nono] yana da sauƙi, amma kuma yana da irin wannan tambaya mai wuyar amsawa: Yaya zan yi jarrabawar kai? Tabbas, kuna taɓa ƙirjin ku. Amma ba wanda ya san ainihin matakan, abin da za a yi. ku nema, kuma idan kun sami dunƙule, me kuke yi? ta yi bayani. (Mai Alaƙa: Alamomi 11 na Ciwon Nono Duk Mace Ya Kamata Ya Sani)

Baya ga rubuce-rubucen da take yi na wata-wata, Allyn tana da haskakawa na Labari na Instagram tare da koyaswar bidiyo na jarrabawar nono, tare da hotunan mata da yawa da ta zaburar da su don bin jagorarta tare da raba nasu rubutun #SelfExamGram. "Ina da masu rubuto mani kamar, 'Ok, na ga sakon ku kamar sau biyar yanzu, don haka ni ma zan yi.' Kuma wannan shi ne ainihin batun gaba ɗaya,” in ji Allyn. (BTW, ga koyaswar mu akan yadda ake yin jarrabawar nono.)

Manufar Allyn ita ce ta samar wa mata abubuwan da take fatan za ta samu a lokacin da take yi mata gyaran fuska da gyaran nono. "Ina tsammanin akwai kungiyoyi da yawa a can don matan [tsofaffi] waɗanda ke fama da cutar sankarar mama," in ji ta. "Amma [babu wadatattun albarkatu] ga wanda ya cika shekaru 20 kuma ya bi ta." (Mai Alaƙa: Abin da nake Fatan Na Sani Game da Ciwon Nono A Cikin Shekaru 20 na)

Don cimma wannan burin, Allyn yanzu yana aiki tare da Gidauniyar AiRS, ƙungiya mai zaman kanta wacce ke haɗin gwiwa da likitoci, masu ba da kiwon lafiya, da cibiyoyin kula da lafiya don ba wa mutane tallafi, bayanai, da albarkatu (na kuɗi da na ilimi) don post- mastectomy nono sake ginawa. (Mai alaƙa: Ciwon nono Barazana ce ta Kuɗi Babu Wanda Yake Magana Akan).

Hakanan kwanan nan Allyn ya ƙaddamar da wani gidan yanar gizo mai suna Previvor, cikakkiyar albarkatu da ke tallafawa mata da zaɓin sake gina nono. Gidan yanar gizon yana ba da ƙarin kayan aiki na zamani, hanyoyin da za a iya kusanci ga matasa mata masu neman sake gina nono bayan mastectomy, ciki har da bayanan bayanan da ke bayanin nau'o'in mastectomy da hanyoyin sake gina nono, cikakkun bayanai game da maye gurbi na BRCA da gwajin kwayoyin halitta, da kuma cibiyar al'umma da ke ƙarfafa mata su "nemo". kabilarsu ”a tsakanin sauran kungiyoyin wayar da kan mata kan nono.

"Ina so in yi Previvor wani abu da zai taimaka wa mutanen da ke da wannan, 'Ya mutum ba zan iya yin wannan ba, wannan zai lalata rayuwata' jin [game da mastectomy da sake gina nono]," in ji Allyn. "Ina so su je don samun damar yin amfani da bayanan kuma a hankali su yi aiki da hanyarsu zuwa hakikanin aikin tiyata."

Kuma idan kun kasance wanda kawai ke son koyon yadda ake yin jarrabawar nono, Allyn yana da sako a gare ku, kuma: "Kada ku ji tsoron zamewa cikin DMs na."

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