Hailey Bieber ta Bayyana Tana da Yanayin Halittar Halittu da ake kira Ectrodactyly - Amma Menene Wannan?

Wadatacce

• Menene ectrodactyly?
• Menene ke haifar da ectrodactyly?
• Bita don

Trolls na Intanet za su nemo duk wata hanyar da za su iya kushe jikin mashahuran - yana ɗaya daga cikin ɓangarori masu guba na kafofin watsa labarun. Hailey Bieber, wacce a baya ta kasance mai buɗe ido game da yadda kafofin watsa labarun ke shafar lafiyar hankalinta, kwanan nan ta nemi trolls na Instagram su daina "gasa" wani sashi na bayyanarta wataƙila ba za ku yi tsammanin za a bincika ta da farko ba: pinkies nata.

"Ok bari mu shiga cikin tattaunawar ruwan hoda .. saboda na yi wa kaina dariya game da wannan har abada don haka ni ma in gaya wa kowa dalilin da yasa [pinkies na] ke da karkatattu da ban tsoro," Bieber ya rubuta a cikin Labarin Instagram cewa ya fito da hoton hotonta mai ruwan hoda, a yarda, ɗan karkatacce ne.

An bayar da rahoton cewa samfurin ya raba hoton da aka goge yanzu na shafin Wikipedia don yanayin da ake kira ectrodactyly, bisa ga Daily Mail. "Ina da wannan abin da ake kira ectrodactyly kuma yana sa yatsuna masu ruwan hoda su yi kama da yadda suke yi," in ji Bieber ya rubuta tare da hoton allo na Wikipedia, a cikin kafar labarai ta Burtaniya. "Kwayar halitta ce, na same ta a duk rayuwata. Don haka mutane za su iya daina tambayar ni 'wtf ba daidai ba ne da yatsun ta masu ruwan hoda.'"

Menene ectrodactyly?

Ectrodactyly wani nau'i ne na tsagewar hannu/tsagewar ƙafar ƙafa (SHFM), ɓarkewar ƙwayoyin cuta “wanda ke nuna rashin cikakkiyar yatsan yatsun kafa ko yatsun kafa, galibi ana haɗa su da tsintsaye a hannu ko ƙafa,” a cewar Ƙungiyar Ƙasa ta Ƙasa Rashin lafiya (NORD). Halin na iya ba da hannaye da ƙafafu “kamar kambi”, kuma a wasu lokuta, yana iya haifar da bayyanar yanar gizo tsakanin yatsu ko yatsu (wanda aka sani da syndactyly), bisa ga NORD.

Kodayake SHFM na iya gabatarwa ta hanyoyi daban -daban, akwai manyan sifofi guda biyu. Na farko ana kiransa nau'in "lobster farantin", wanda a cikinsa akwai "yawanci rashi" na yatsan tsakiya; “Sura mai siffar mazugi” a wurin yatsan da gaske yana raba hannun zuwa kashi biyu (samar da hannun ya yi kama da katsawa saboda haka sunan), a cewar NORD. Wannan nau'in SHFM galibi yana faruwa a hannu biyu, kuma yana iya shafar ƙafafu, ta kowace ƙungiya. Monodactyly, sauran babban nau'in SHFM, yana nufin babu duk yatsun hannu banda ruwan hoda, a cewar NORD.

Ba a san ainihin irin nau'in SHFM Bieber da ke da'awar samun ba - a fili tana da duk yatsu 10 a hannunta - amma kamar yadda NORD ya lura, akwai "nau'i da haɗuwa da nakasa" daban-daban waɗanda zasu iya faruwa tare da SHFM, da kuma yanayin "jeri. yadu cikin tsanani." (Mai alaƙa: Wannan Samfurin da ke da Ciwon Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittar Halittu)

Menene ke haifar da ectrodactyly?

Kamar yadda aka ruwaito Bieber a cikin Labarun ta na Instagram, ectrodactyly yanayin jinsi ne, ma'ana waɗanda ke da ita an haife su da shi (ko dai saboda kayan kayyakin halittar ko maye gurɓin halittar bazuwar), a cewar Cibiyar Ba da Labaran Cututtuka da Rare (GARD). SHFM, gaba ɗaya, na iya shafar jarirai maza da mata daidai. Kusan daya daga cikin jarirai 18,000 ana haife su da wani nau'in yanayin, ta NORD. Yayin da SHFM na iya yin tasiri ga membobin iyali ɗaya, yanayin zai iya kasancewa daban-daban a kowane mutum. An gano shi ne bisa “fasalolin jiki da ke akwai a lokacin haihuwa” da kuma ɓangarorin kwarangwal da aka gano ta hanyar binciken X-ray, in ji NORD.

A mafi yawancin, mutanen da ke da nau'in SHFM galibi suna rayuwarsu ta yau da kullun, kodayake wasu na iya samun "matsaloli a aikin jiki," gwargwadon yadda mummunan lalacewar su ke, a cewar NORD. Hakanan akwai “karancin lokuta na SHFM” waɗanda wani lokacin suna tare da kurame, a cewar wani binciken da aka buga a cikin 2015 CHRISMED Jaridar Lafiya da Bincike.

Baya ga Bieber, babu adadi na jama'a da yawa waɗanda ke da wani nau'in SHFM (ko aƙalla ba da yawa waɗanda suka buɗe game da yanayin). Mai gabatar da labarai da mai gabatar da jawabi, Bree Walker a ƙarshe ya fito fili tare da gano cutar ta ta syndactyly (wanda aka kwatanta da yatsu biyu ko sama da haka) bayan shekaru na ɓoye hannayenta a cikin safofin hannu guda biyu. Komawa cikin '80s, Walker ya fada Mutane sau da yawa ana yi mata muguwar azaba kamar kallo da sharhin da ba a so daga bakin mutane game da yadda hannayenta da ƙafafunta ke kallo. Walker ya ci gaba da zama mai fafutukar kare hakkin nakasa ga wadanda ke da irin wannan yanayi. (Mai alaka: Jameela Jamil ta bayyana cewa tana da Ehlers-Danlos Syndrome)

A bangaren Bieber, ba ta yi karin bayani kan yadda, daidai, ectrodactyly ya yi tasiri a rayuwarta ba, kuma ba ta ambaci ko tana da wasu nakasu ba baya ga bayyanar yatsanta mai ruwan hoda.

Wancan ya ce, koyaushe yana da kyau a tuna cewa yin tsokaci kan jikin wani ba mai sanyi bane - cikakken tasha.

Bita don