Mai Jigilar Cibi na Cystic: Abin da kuke Bukatar Ku sani

Wadatacce

• Shin ɗana za a haifa da cystic fibrosis?
• Shin cystic fibrosis na haifar da rashin haihuwa?
• Shin zan sami alamun bayyanar idan na kasance mai ɗauka?
• Yaya yawan masu ɗaukar cystic fibrosis?
• Shin akwai magunguna don cystic fibrosis?
• Outlook
• Ta yaya za a gwada ni don CF?

Menene mai ɗaukar cystic fibrosis?

Cystic fibrosis cuta ce ta gado wacce take shafar glandon dake sanya gamsai da zufa. Yara za a iya haifa da cystic fibrosis idan kowane mahaifa yana ɗauke da ɗayan lalatattun ƙwayoyin cuta don cutar. Wani da ke da kwayar CF guda ɗaya kuma ɗayan CF mara kyau an san shi da jigilar ƙwayoyin cuta. Kuna iya zama mai ɗauka kuma ba ku da cutar da kanku.

Yawancin mata suna gano cewa suna ɗaukarwa yayin da suka zama, ko kuma suke ƙoƙarin zama, masu ciki. Idan abokin tarayyarsu ma mai ɗauka ne, ana iya haihuwar ɗansu da cutar.

Shin ɗana za a haifa da cystic fibrosis?

Idan kai da abokin tarayyar ku duka masu ɗauka ne, mai yiwuwa za ku so ku fahimci yadda wataƙila za a haifi ɗanku da cystic fibrosis. Lokacin da masu ɗauke da CF guda biyu suka sami ɗa, akwai yiwuwar kashi 25 cikin ɗari na cewa za a haifa musu jaririn da cutar da kuma kaso 50 cikin ɗari na cewa jaririn na su zai zama mai ɗaukar kwayar cutar ta CF, amma ba su da cutar da kansu. Inayan cikin yara huɗu ba zai zama masu ɗauke da cutar ba kuma ba za su kamu da cutar ba, saboda haka ya fasa layin gado.

Yawancin ma'aurata masu dauke da kwayoyi suna yanke shawarar yin gwajin gwajin kwayar halitta a kan amfrayo, wanda ake kira preimplantation genetic diagnostic (PGD). Ana yin wannan gwajin ne kafin a sami ciki a kan amfrayo da aka samo ta cikin injin in vitro (IVF). A cikin PGD, ana fitar da ƙwaya ɗaya ko biyu daga kowane amfrayo kuma ana yin nazari don sanin ko jaririn zai:

• da cystic fibrosis
• zama mai dauke da cutar
• bashi da cikakkiyar kwayar halitta kwata-kwata

Cire kwayoyin halitta ba zai shafi amfrayo ba. Da zarar ka san wannan bayanin game da amfrayo, za ka iya yanke shawarar wacce za a dasa a mahaifa da fatan samun ciki zai faru.

Shin cystic fibrosis na haifar da rashin haihuwa?

Matan da ke jigilar CF ba sa fuskantar matsalolin rashin haihuwa saboda hakan. Wasu mazan da ke jigilar suna da takamaiman nau'in rashin haihuwa. Wannan rashin haihuwa yana faruwa ne sanadiyyar bututun da aka rasa, wanda ake kira vas deferens, wanda ke daukar kwayar halittar maniyyi daga kwayar cutar zuwa cikin azzakari. Maza masu wannan ganewar suna da damar zabar maniyyinsu ta hanyar tiyata. Sannan ana iya amfani da maniyyi don dasa abokin tarayya ta hanyar magani da ake kira intracytoplasmic sperm injection (ICSI).

A cikin ICSI, ana sanya maniyyi guda a cikin kwai. Idan hadi ya faru, an dasa amfrayo a cikin mahaifar mace, ta hanyar in vitro fertilization. Tunda ba duk maza bane masu ɗaukar CF suke da batutuwan rashin haihuwa, yana da mahimmanci duka abokan biyu suyi gwaji akan kwayar halittar.

Koda koda ku biyun masu ɗauka ne, zaku iya samun yara masu ƙoshin lafiya.

Shin zan sami alamun bayyanar idan na kasance mai ɗauka?

Yawancin masu ɗaukar CF suna da alamun rashin ƙarfi, ma'ana ba su da wata alama. Kusan ɗaya daga cikin Ba'amurke 31 shine mai ɗaukar alamun rashin kwayar cutar CF mai rauni. Sauran masu jigilar kayayyaki suna fuskantar alamun cututtuka, waɗanda yawanci m. Kwayar cutar sun hada da:

• matsalolin numfashi, kamar mashako da sinusitis
• pancreatitis

Yaya yawan masu ɗaukar cystic fibrosis?

Ana samun masu jigilar Cystic fibrosis a cikin kowace ƙabila. Mai zuwa kimomi ne na masu jigilar maye gurbi na CF a cikin Amurka ta ƙabilanci:

• White mutane: ɗaya cikin 29
• Hispanics: ɗaya cikin 46
• Baƙin fata: ɗaya cikin 65
• Asiyawan Amurkawa: ɗaya cikin 90

Ba tare da la'akari da ƙabilar ku ba ko kuma kuna da tarihin iyali na cystic fibrosis, ya kamata ku gwada.

Shin akwai magunguna don cystic fibrosis?

Babu magani don cystic fibrosis, amma zaɓin salon, jiyya, da magunguna na iya taimaka wa mutane da CF rayuwa cikakke, duk da ƙalubalen da suke fuskanta.

Cystic fibrosis da farko yana shafar tsarin numfashi da sashin narkar da abinci. Kwayar cutar na iya zama cikin tsanani da canji a kan lokaci. Wannan ya sanya buƙatar yin aiki da kulawa da kulawa daga ƙwararrun likitoci musamman mahimmanci. Yana da mahimmanci a ci gaba da yin rigakafin zamani da kuma kula da yanayin hayaki.

Jiyya yawanci yana mai da hankali kan:

• kiyaye isasshen abinci mai gina jiki
• hanawa ko magance toshewar hanji
• kawar da lakar daga huhu
• hana kamuwa da cuta

Doctors galibi suna ba da magunguna don cimma waɗannan burin maganin, gami da:

• maganin rigakafi don hanawa da magance kamuwa da cuta, da farko a cikin huhu
• enzymes na pancreatic na baka don taimakawa cikin narkewa
• ƙwayoyi masu laushin goshi don tallafawa sassautawa da cire ƙoshin daga huhu ta hanyar tari

Sauran jiyya na yau da kullun sun haɗa da mashako, wanda ke taimakawa buɗe hanyoyin iska, da kuma maganin jiki don kirji. Ana amfani da tubunan ciyar wasu lokuta cikin dare don taimakawa tabbatar da isasshen adadin kuzari.

Mutanen da ke da alamun rashin lafiya sau da yawa sukan amfana daga hanyoyin tiyata, kamar cire polyp na hanci, tiyatar hana hanji, ko dashen huhu.

Magunguna don CF suna ci gaba da haɓakawa kuma tare da su ingancin da tsawon rayuwa ga waɗanda suke dashi.

Outlook

Idan kuna fatan zama mahaifa kuma ku gano cewa kuna ɗauka, yana da mahimmanci a tuna cewa kuna da zaɓuɓɓuka da iko akan halin da ake ciki.

Ta yaya za a gwada ni don CF?

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